Anyone who has started the new drug, Ocrevus. I just took the 2nd dose. The start up is divided in 2 weeks. IV INFUSION it is 6 hours-at infusion. Between the pre meds and actual medication, hen waiting 1 hour to check for side effects.
So fs I had increased spasticity for a few days and increased weakness. Nothing too terrible.The worst part is being there for 6 hours. I get very uncomfortable. sitting too long. Chair not good for me.
I hope this works for me.
please join if you started.
Hi traveling1! I know that Ocrevus is pretty new within the MS community, so I can’t say how many of our members have tried it yet. Here is one person’s story about Ocrevus that you may find interesting — https://multiplesclerosis.net/living-with-ms/ocrevus-patients-story/comment-page-1/#comments. I hope this medication works well for you. I do know that infusion days can be challenging. You may want to find things that can help you pass the time. I know some of our members will read or bring audio books on Ipods or MP3s so they can listen and relax while in the infusion chair. Some people find online games like Candy Crush or Angry Birds as a good way to fill the time. It may take some time to find what helps you get through infusion days, but I do hope you find it less uncomfortable as time goes on. You can let the nurses know that you are experiencing discomfort. They may be able to provide extra pillows, heating pads, or something else to help combat the discomfort a little. Best of luck and please keep us posted on how you are doing, if you feel comfortable doing so. Best, Erin, MultipleSclerosis.net Team Member.
Thank you for sharing, nikkimarie06! I am glad your first dose went well. I hope you start feeling less fatigued very soon and that your next appointment goes well, too. Best, Erin, MultipleSclerosis.net Team Member.
I started ocrevus last Aug.2018. I am at the point that I can still walk, but a trip across my house to the Kitchen and back is about all I can manage. If I want to go for a “stroll” ’round the neighborhood I have to use my wheelchair. Before I started the ocrevus I was in the ER about every couple of months. But no trips since April so I am satisfied that it is living up to the claims. I have had no side effects at all. So I say so far so good.