I went for my first infusion December 5.. Got up in the middle of the night, and I felt more steady. The next day, I noticed my foot drop was better! I never expected to see results so soon. Diagnosed in 1989, been on Betaseron, Avonex, and Copaxone.. Hopefully, this will be the one!
I’m so glad to hear about your improvement while taking Ocrevus! I personally had my first dose in June and had my second dose right after Christmas. I too had tried other medications and I feel like this is the best one I’ve had by far.
Thank you for sharing your experience!
I recently went to a new neurologist, after I felt I wasnt getting answers from my previous neurologist. The new doc said I had secondary progressive…..needless to say, Im scared and he wants me to start ocrevus infusions. but what if he is wrong? shesh treatment dilemmas!
Hi, I saw that you noted that your doctor wants to start you on Ocrevus infusions. I thought Ocrevus infusions were for primary progressive MS (PPMS). I heard that this is the first time that they have actually been able to achieve some sort of treatment at all. I’m also secondary progressive (SPMS) and I have been on Tysabri infusions for three years. Maybe you should clarify this with your neurologist. It is still scary and I really dread the monthly needles and infusion, but it is supposed to be the best drug therapy program.
I talked to two Neurologist, one doctor said he isnt sure that I have SPMS, but ocrevus is good and also for RRMS and the other doctor said I do have SPMS and ocrevus was good for me to take for SPMS..needless to say its been confusing for me but Im going to try Ocrevus…
Wishing you the best with trying it out! I love it so far. I started it in June of last year. I haven’t had any issues with it, and my MS is fully in remission. No new lesions and no inflammation on old lesions.
Hope all goes well!
Ashley Ringstaff – MultipleSclerosis.net Team Member
I began taking Ocrevus this year, and have discovered that my infusion center is marking up the cost of the drug by 375% of retail cost when billing my insurance provider. My insurance company agreed to pay more than 250% of the cost of the drug. Retail = approx $65,000.
My employer, seeking to contain costs, elected to have my pharmaceutical insurance provide the drug to the infusion center, presumably at a cost much closer to retail. However, the infusion center will not accept Ocrevus for infusion from a 3rd party pharmacy, citing pharmaceutical licensing restrictions.
The infusion center (at a hospital) states that they charge this amount, essentially, because they can, and it helps their bottom line. I take exception to this because they’re basically balancing their books on the backs of MS patients.