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Treatment

Ocrevus

  • By pmt75p

    I went for my first infusion December 5.. Got up in the middle of the night, and I felt more steady. The next day, I noticed my foot drop was better! I never expected to see results so soon. Diagnosed in 1989, been on Betaseron, Avonex, and Copaxone.. Hopefully, this will be the one!

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  • By Erin Rush Moderator

    That’s GREAT, pmt75p! I hope this trend continues for you and thank you for sharing! Keep us posted! Best, Erin, MultipleSclerosis.net Team Member.

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  • By Ashley Ringstaff Moderator

    pmt75p,

    I’m so glad to hear about your improvement while taking Ocrevus! I personally had my first dose in June and had my second dose right after Christmas. I too had tried other medications and I feel like this is the best one I’ve had by far.
    Thank you for sharing your experience!

    Best,
    Ashley Ringstaff
    MultipleSclerosis.net Moderator

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  • By Ashley Ringstaff Moderator

    Ms. Diva,

    Hope you’re doing well! I didn’t have ‘noticeable’ changes right away. It was more of a looking back, after my husband pointed something out, that I realized I wasn’t as fatigued.

    What I like so far is that it doesn’t have the side effects that the other meds had.

    xoxo
    Ashley Ringstaff
    MultipleSclerosis.net Moderation Team

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  • By Bkboo

    I recently went to a new neurologist, after I felt I wasnt getting answers from my previous neurologist. The new doc said I had secondary progressive…..needless to say, Im scared and he wants me to start ocrevus infusions. but what if he is wrong? shesh treatment dilemmas!

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  • By Carol

    Hi, I saw that you noted that your doctor wants to start you on Ocrevus infusions. I thought Ocrevus infusions were for primary progressive MS (PPMS). I heard that this is the first time that they have actually been able to achieve some sort of treatment at all. I’m also secondary progressive (SPMS) and I have been on Tysabri infusions for three years. Maybe you should clarify this with your neurologist. It is still scary and I really dread the monthly needles and infusion, but it is supposed to be the best drug therapy program.

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    • By Bkboo

      I talked to two Neurologist, one doctor said he isnt sure that I have SPMS, but ocrevus is good and also for RRMS and the other doctor said I do have SPMS and ocrevus was good for me to take for SPMS..needless to say its been confusing for me but Im going to try Ocrevus…

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    • By Ashley Ringstaff Moderator

      Wishing you the best with trying it out! I love it so far. I started it in June of last year. I haven’t had any issues with it, and my MS is fully in remission. No new lesions and no inflammation on old lesions.

      Hope all goes well!
      Best,
      Ashley Ringstaff – MultipleSclerosis.net Team Member

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  • By jeffluner

    I began taking Ocrevus this year, and have discovered that my infusion center is marking up the cost of the drug by 375% of retail cost when billing my insurance provider. My insurance company agreed to pay more than 250% of the cost of the drug. Retail = approx $65,000.

    My employer, seeking to contain costs, elected to have my pharmaceutical insurance provide the drug to the infusion center, presumably at a cost much closer to retail. However, the infusion center will not accept Ocrevus for infusion from a 3rd party pharmacy, citing pharmaceutical licensing restrictions.

    The infusion center (at a hospital) states that they charge this amount, essentially, because they can, and it helps their bottom line. I take exception to this because they’re basically balancing their books on the backs of MS patients.

    Has anyone else experienced this practice?

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