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Shingles (Ouch!)

  • By Crystal【ツ】

    Has anyone else had shingles? I read there was a study that found taking Tecfidera increased the chances of getting shingles. I was wondering if anyone else has gotten them?

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  • By Erin Rush Moderator

    HI Crystal! I know some members of our community have dealt with shingles; whether it is related to MS medications or not, I cannot say. I thought you might find this article on shingles and other, similar viruses, interesting — https://multiplesclerosis.net/living-with-ms/ms-and-herpes/. While I am not a doctor, the general census in medical circles is that any immune suppressing drug can allow viruses already present in the body (like shingles) to ‘flare’ up, since the natural responses of the immune system are being suppressed by the medication. I hope this information is helpful for you and thank you for reaching out to the MultipleSclerosis.net community. Best, Erin, MultipleSclerosis.net Team Member.

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  • By Carol

    Ouch is right. I had shingles and it did hurt a lot. I had gotten the shingles vaccine when I turned 60 since there were so many sources recommending it. Darn, if I didn’t get shingles when I was 62. I couldn’t believe it. Other people told me later that their doctors told them not to get the shingles vaccine. I have a feeling that they were indicating that the shingles vaccine gave me shingles. I don’t know what to think, but I was sure mad when I got shingles. I was not allowed to go to work for 6 weeks and had to get a release from my doctor that it was safe for me to return to work. I didn’t know at that time that I had MS. Of course, I was one of those that had been misdiagnosed for years and years.

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