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Somewhat confused about my ms.

  • By UristMcDwarf

    Hi, so I was diagnosed with ms on the 6th, I’m 23 and a guy and have had it for around 5 years, when I was diagnosed my neurologist said it was pretty aggressive. However I am confused because it hasn’t affected me very much at all. I have had light neuropathy in my lower legs since 2013, my eyes misaligned for a couple weeks twice, once in 2014 and once in january this year, and I had weakness in my right knee for 2 weeks late this year. Would the ms be in remission for all that time? Did I luck out with my genes? I just don’t understand how I can have aggressive ms yet it has done so little.

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  • By UristMcDwarf

    I forgot to mention that the weakness was diagnosed as vitamin d deficiency and was better after getting supplements and the neuropathy was relieved by going to a chiropractor for the first couple years which is why I didn’t get it checked out sooner.

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  • By Erin Rush Moderator

    Hi UristMcDwarf! One common phrase is the MS community is that “no two MSers are alike”. Even if you are diagnosed with a specific form of MS, your progression may vary widely from another person diagnosed with the same form of MS.

    As far as the Vitamin D issue, Vitamin D is considered to be a potentially helpful supplement for every individual, especially those living with MS. You can read more about that here — https://multiplesclerosis.net/news/vitamin-d-analog-significantly-reduce-fatigue-2/ and here — https://multiplesclerosis.net/blog/we-dont-run-around-naked-as-much-as-we-should/. A number of our members also use chiropractic care as a form of complementary care on top of their typical MS treatment protocols. Here is some information on that — https://multiplesclerosis.net/natural-remedies/chiropractic-massage-pilates/. So, you may have been inadvertently managing your MS issues before you were even diagnosed!

    Hopefully, some of our members can chime in with personal input for you as well.

    Thanks for sharing and for joining our community! Please don’t hesitate to reach out if you have any other questions or concerns.

    Best, Erin, MultipleSclerosis.net Team Member.

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  • By alewis611

    Thank you for all your posts; very informative & helpful. I seem to be getting in somewhat of a funk; getting ready to travel for my 40th H.S. graduation, booked the flight but not feeling so enthusiastic as I was.

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  • By Carol

    UristMcDwarf,

    Yes, she is absolutely correct. There are no two MS sufferers that are the same. We all go on our own MS journey. Sometimes, some of us envy those MS sufferers that are better off than us, they can do things like walking rather normal. I have my 50th H.S. reunion coming up in a couple of weeks, I am not really able to go plus I don’t want them to see me this way.

    I knew for decades that something was wrong with me, but it wasn’t until around 2010 or 2011 that I knew something wasn’t right. The PCP at the time didn’t do anything, I went to her for five years telling her the same symptoms over and over again and all she did was put it in her notes. The neurologist she sent me to was worthless. It was time to find another neurologist and PCP. The neurologist knew right away something wasn’t right by the way I was sitting and when he told me to walk. He sent me for a MRI and that confirmed that I had MS.

    Enjoy what you can and be careful about your health too. Have a good time at your reunion!

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