Hello all from Canada. I am so surprised when reading postings about PWMS in the US about how early on and how frequently you are put on steroids. Here it is a rare thing and only used if the exacerbation is pretty severe – like if you can’t walk or see. Tingling and numbness are simply not treated except by rest.
I often wonder if my general quality of life would be improved if when I was laid low by fatigue or some other symptom I was to take steroids, but then I worry about the side effects (as our doctors seem most concerned about here). Does it seem to help overall? Do you think it is making a difference to the progress of your disease? Do you ask for steroids for flare-ups or does the doctor suggest them?
I’m just curious about the difference in treatment as if seems so definitive.