I’m having a dilemma. Since my diagnosis in 2001, I have tried rebif, Avonex, Copaxone, and tecfidera. Each medicine gave me awful side effects that made me feel awful, not want to leave my bed, go to work etc. Tecfidera made me sweat all night and random flushing and I felt awful. I am fortunate to only have 3 active lesions and very little changes in the 10 years.
What do you do when the treatment drugs make you feel so awful? I know I have MS and I listen to my body. I am able to live a pretty normal life, unless I take the meds. Then I end up in bed all the time with migraines and sick feeling, fatigue and exhaustion.
I’m worried about progression in the future but want to live life while I can.