I am a bit disillusioned at the moment. I am having yet again another bladder infection and I am really run down. My line manager at work has just given me loads of work, more than even a healthy person could manage. I did discuss the issue with him on several occasions, but he does not want to listen. He knows about my MS, but somehow do not understand, that 40 hours plus doctors appointments and so on is a lot to take on.
I feel really exhausted and all my sister has to say is, that I should just pull myself together and get on with it – on one occasion describing me as being weak. My partner tells me that, I should think more positive. In fact, at the moment he is thinking of leaving me, because I am not enough “fun”. While ignoring the fact that maybe him getting hardly any work (he is a freelance designer) is the main cause for his unhappiness.
I am trying my best to get on with life, even when walking is difficult, my bladder is all messed up and I am just tired most of the time. I know it could be worse … but still. I just wished that sometimes, people would be a bit more compassionate and think before they speak. I guess they are just as scared as I am … and do not know how to respond differently. But that makes dealing with MS a lonely business at times.