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Am I crazy?

I have been having “symptoms” for about 9 years. Off and on. Some days worse than others. I have migraines. I’ve had them since I was a child. I do understand some of my symptoms could be related, but there are just too many, going on for too long to ignore. I’ve been to 5 GP’s 2 neurologists, an ENT, a rheumatologist, a psychiatrist, and an endocrinologist. As far back as I can remember I’ve had some sort of pain. I never ever feel “good” I just have better days, but I’m getting progressively worse. These are my problems and/or symptoms:
Headache/migraine, numbness/tingling in various body parts, extreme left side facial pain, memory loss/brain fog, concentration problems, gait issues, clumsiness, general pain, leg spasms, leg stiffness and muscle cramps, bladder urgency, diarrhea, psoriasis, chest tightness/sharp pain, burning pain down spine (newest problem), slurred speech, word finding issues, pain behind left eye, heat intolerance, tremor, vertigo, and the worst, FATIGUE, extreme debilitating fatigue. I have been “diagnosed” with:
Migraines, Trigrminal Neuralgia, Sleep Apnea, RLS, Anxiety, Depression, Diabetes, IBS, Chronic Fatigue, and both, maybe Fibromyalgia and Fibromyalgia isn’t a real disease. I’m at a loss. It’s so bad I can barely make it through a day. Last year I went to the ER with the most excruciating pain I’ve ever had in the left side of my face. I was diagnosed with Trigeminal Neuralgia. It felt like I had a stun gun directly on my cheek. I’ve had 3 MRI’s since 2010. In 2010 I was told I had a TIA, and I had a small lesion which was probably from that or migraines. I was 35. I just had a MRI last month that showed: On the FLAIR sequences there are 2 tiny, less than 5 mm foci of hyperintense
signal within the frontal lobe regions bilaterally in a subcortical
distribution which are nonspecific but likely reflect tiny areas of chronic
microvascular ischemia. These can be seen in patients with chronic migraine
headaches. Again brushed off as migraines. I realize DO have migraines, but I know for a fact they would not cause problems with chest, legs, arms, bladder/bowels etc.... they are making me feel actually crazy. Like I’m faking. Even my family including my husband, kids, and mom make jokes about my forgetfulness, and my word finding incapability. 2 years ago I even became dizzy while walking down my basement stairs and fell. I broke my 5th metatarsal in 3 places. I know this is not “in my head”. I just don’t know what else to do. Sorry for the extremely long post. I’m just at a loss.

  1. @slcounts, your story is, unfortunately, a common one, and that's not said to diminish your suffering. Neurologists rely heavily on MRI findings, and it is true that conditions such as migraine can cause brain lesions similar to those of MS.
    Have you had a lumbar puncture? An abnormal spinal fluid result would narrow down the differential diagnoses quite a bit. Evoked potentials might help, too. These two tests are part of the diagnostic criteria for MS.

    Are you taking any medications for your symptoms? These can be prescribed without a diagnosis. Meds can help manage your symptoms and improve your quality of life while you wait for a diagnosis.

    Please feel free to come here and vent whenever and however you want. We're here, we understand, and we know your suffering is real. I hope you get some relief very soon. Best, Kim, moderator

    or create an account to reply.