I agree with you. My eyes have always been sensitive to the sun even before a diagnosis. It has been a terrible summer. Just a little bit of heat causes me terrible fatigue, massive weakness the pins and needles in my hands, feet and face are way worse. And from the top of my cheekbones to my chin go completely numb including my lips and tongue. I carry gallon bags of ice with me since ice packs don't seem to last as long. Completely miserable.