So... I've been given a diagnosis of functional neurological disorder. And with this, I feel like... maybe I should back away from the forum. All of my scans show no demyelination, so good but bad. My hardware is fine but my software is corrupted. Unfortunately this means that I just get to experience this, the only 'treatment' option available is conversation therapy, which I am fundamentally opposed to.
I have such mixed emotions with this...devastion that there's really nothing I can do to make my situation improve. Relief that I have no physical damage visible. Sad that fnd has no community like I've found here. And worried about what's going to happen next.
My neuro symptoms keep getting worse, I'm not going to stop following up with scans and blood work to monitor. But I'm not going to fight the science. It just... sucks. In a way that I didn't imagine.
With fnd, there's usually no medications that affect the symptoms experienced. I don't expect that to change, as long as it remains that the physical cause remains unknown.
So I've decided to embrace what I have, do what I want, and take every bruise, every tremor and every fall along the way. We're going to start hiking again...if I fall, hopefully there's a tree to grab. We're going to have fun, every day. I'm going to dance every day.
But I wanted to share because this has been such a wonderful and supportive community, and several folks have responded to my posts over the last two years. I don't want to diminish anyone in the community with where I ended up. I'll remain hopeful that new developments will happen, and maybe we'll find something to help. So much love and respect to you all ππ