Lost …

Someone told me when I started my journey…”Don’t borrow trouble!” Meaning deal with only what’s real and what actual impact it has on your life. There are ways to deal with just about every symptom. Also this is a great community to get answers from. Good luck! You got this!

hi and welcome! Don't ever feel embarrassed to come here and ask any question! We're here to help! First, I am so sorry you have had to deal with a lack of a diagnosis for so long; I know that's its own kind of torture!


Second, I am glad you at least have some answers now, although I wish no one had to deal with MS (or whatever condition you are finally diagnosed with).


And Third, you are already doing some very smart things -- seeking support and reputable resources. You don't have to face this alone. And ironically, we have a contributor that was diagnosed with MS as a teenager and recently gave birth . . . to triplets! She has an older son as well (here's just one of her pieces -- https://multiplesclerosis.net/living-with-ms/motherhood-optimism-hope). So, while no person's journey is exactly like another's, we have some contributor's that can really relate to where you're at right now! And pretty much all of our members can relate to that newly diagnosed stage, which can feel so overwhelming at times. Here's another piece about being newly diagnosed that I thought you might find reassuring -- https://multiplesclerosis.net/living-with-ms/advice-for-newly-diagnosed.


And while your mother should NOT feel guilty, as a mom yourself you know how insidious that 'mom guilt' can be! While MS does have a genetic component, researchers are still learning exactly how it it can be passed down in families. Your Mom could not have known that you would someday be diagnosed MS. Neither of you should feel any guilt. And she will understand what you are going through better than many people around you.


Please know you are NOT alone in this and you CAN do this. Truly. Whether it's MS or another condition, you can do this. It's okay (and normal!) to feel overwhelmed, or sad, or angry, or numb, or broken or any other feelings you may have. Go ahead and let those feelings happen. And come here anytime you need some support or an encouraging word.


Best, Erin, MultipleSclerosis.net Team Member.

Hi ! So sorry to hear what you have been through. You are very welcome here! Sadly, many people struggle to get an appropriate diagnosis in a reasonable timeframe. I cannot stress enough the importance of seeing as many doctors as you can, preferably one's that specialize in MS. As for your future, there is a lot of reason for hope. Not that there is ever a good time to get a disease like MS, but there are so many treatment options (the infusion meds are especially effective) these days (with more on the way). This really is a time of great hope if you have MS. Remember, you always have a place here, and we are happy to help in any way we can!