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Follow up on study from 2019 showing one out of five MS patients are misdiagnosed?

Have MS researchers followed up on findings released spring 2019 that suggest we have a 20% misdiagnosis rate? Are they looking for patients to reassess? Has anyone’s neurologist or clinician in charge made an effort to make sure your diagnosis is correct?

  1. Hi . That's an interesting question. I am curious as well to see what the community has to say. I am always surprised to learn that some people with MS have never been tested for Lyme disease. Chronic Lyme disease is often misdiagnosed as MS and mimics so many of the symptoms, including lesions on the brain. I hope you get lots of responses. Best wishes! – Lori, MultipleSclerosis.net, Team Member

    1. Hi Lori,

      Thanks for responding. I’m hopeful others are also curious about this shocking report that seemed to go nowhere. Here is a link to the research findings: Multiple Sclerosis Misdiagnosis: A Persistent Problem to Solve
      María I. Gaitán and Jorge Correale

      https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6514150/

      1. Thanks for sharing the link, @hellomynaneis1! That's some very interesting stuff! It definitely makes you think. – Lori, MultipleSclerosis.net, Team Member

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