I was diagnosed with RRMS eight years ago. I have had several experiences with some of the more common symptoms, but nothing really traumatic until last fall. I have fatigue at the end of some days, that stops all activity and calls for early bedtime. I cope. End of August last year, the rest wasn't helping. When I realized I was staying in bed late into the mornings and doing nothing when I did get up, I felt something else was going on. Didn't care. I went from extreme fatigue to serious depression, but wasn't aware of it. Turned my phone off because it irritated me. Didn't get up to answer door, skipped meals, learned to surf the TV, but never payed much attention to what was on. It was just on all the time. My dog learned to come get me up when she was hungry or wanted out (bless her heart). I remember staring out the window or often would make it out to the patio to just sit and watch the wind blow, a common power of some with MS.
Then holiday season arrived. No excitement, no enthusiasm, no anticipation, no planning, no decorating, no gift shopping, no caring, no JOY. I accepted the fact I was in a very serious depression that I needed help with. I had no one. That's what I thought because I was depressed.
I survived thru the holidays thanks to Sassy, my dog, and some family members who pushed their way into my life.
I got thru the depression by January, but as I get older (72), the fatigue gets worse. I said to myself I'm getting a therapist so I don't go thru this alone if it happens again. The first thing we talked about was the difference between fatigue and depression. We'll do more of that discussion at out next session. I think I'm really going to like her.
I'm back in PT, that was downer last summer, so I quit. Big Mistake. I really do feel better when I do physical activity. I have a rule now that when I get tired, I sit/rest until I can get up and go. I try not to get too tired. It just makes everything harder. Fatigue is the hardest symptom for me to admit to others, because they can't see it, or help me thru it.
I'm not taking any meds for fatigue, but I take Duloxetene for anxiety/depression. My Dr insists it does not affect the fatigue. Fingers crossed.
My lesson learned from this experience is to take the fatigue seriously, and limit the length of time I put up with it. I don't really know when I went from fatigue to depression, or maybe it was depression that brought on the fatigue. Whichever, I hash mark my calendar when something is not resolving, or might be transitioning to something else. Three marks in a row, and I call friends, family, or therapist.
MS seems like a very personal/public road we travel, and each intersection trails off to a new complication of life that must be experienced and resolved if possible. So keep your cool, and reach out to any and all resources available to you. You may not need the help today, but who knows about tomorrow.