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No sensations at all

Has anyone experienced loss of sensations? I have lost 50 lbs because I get no satisfaction from any food. I cannot get that "good" feeling when my back or feet are rubbed or tickled. Bought a new car thinking I would get that new car excitement, but I didn't. I also got a new cell phone thinking that would be exciting, but It wasnt. I can remember the good taste food should have. I cook it and I might as well be eating a rock. Has anyone else experienced this?!
All I can find on sensations is burning, itching, crawling or pain. But this is totally different.
Thanks, Holli

  1. Sensory loss when you experience a loss related to; sight, hearing, smell, touch, taste and spatial awareness. So the bits related to your feet make perfect sense in relation to sensory loss:
    "Sensory loss is the most frequent of all neurological findings in MS. It is present in 90% of patients at some time during the clinical course. " Source: Rajas Deshpande, ... George P.A. Rice, in Neurology and Clinical Neuroscience, 2007
    As for the other things, I'd talk to your doctors about those (all of it really). Is it possible that you could be still grieving or going through a depression? I ask because a lack of excitement in things that are normally considered exciting can be a symptom of depression. MS can also cause changes in mood and processing, give its affects on the brain so the rest might be possible (that's really a neurologist's territory to answer).

    And yes, I have experienced (and still do) several different types of true sensory loss (lost all sense of proprioception in my legs, the sense of their position, as well as pressure sense, or anything beneath the skin really sort of the opposite of what you have, if I don't move or touch them my brain forgets they are there lol). I have not had the flat emotional affect you mention though, if I did, my first thought for myself in that case for would be depression, since MSers are more predisposed to depression it has a higher likelihood for me, and depression can affect this. Depression has 100% affected this emotional/pleasure aspect for me before, and treatment for that relieved it in my case. If I was certain that depression wasn't a factor after checking with my doctors and MS-specialized psychiatrist (our clinic uses this type of specialist in cases of depression and off-label MS symptom management meds), then I'd talk to the neurologist about it to make sure to keep him in the loop, since new symptoms can sometimes be a subtle indicator of relapse. Also, when my neuro hears of depression-like symptoms they screen for it with tests, since it can also be caused my some DMTs and that might warrant a change of DMT.


    Best of luck in identifying the source! Please consider this response also to this similar question you posted:


    https://multiplesclerosis.net/forums/loss-of-senses




    1. I can relate to some of this I've also lost weight my tast has hanged alot not much appeals to me and sometimes I forget to eat at all. I don't get excited about things either but started seeing a therapist as I was just diagnosed in November and wondered if I was depressed but the appetite change has been ongoing for 2 yrs. Best wishes

      1. therapy definitely helps, this group has helped just to know its not just me I'm not crazy helps

      2. You're definitely not alone here, Shan. Thinking of you and sending some hugs your way today. 🧡 Kayleigh, MultipleSclerosis.net team

    2. I actually DO have this issue! The most recent one was not having the excited feeling of having no feeling of accomplishment in finishing a 2 year associates degree in 6 months. I bought a new fully customized computer (I'm a techie/geek/nerd) and felt no excitement when I opened the box, compared to 6 years ago, when I bought a new computer and was STOKED when I opened it. It feels weird writing this, but I'm glad someone else has this weird non-feeling issue, because now I don't feel like I'm just dead inside.

      1. Hi Holli
        I have experienced these same symptoms except mine come and go. I remember what it was like to feel tickled, never thought I'd miss that. I force myself to eat. Usually once the hunger pains start up, I give in. My husband is the cook in the family so he makes sure one good meal a day is placed in front of me. I also get a lot of what I call "jerking." I know what spasms feel like but this is different. I'll get a very painful/itching "poke" and then my whole leg will jerk around for awhile. It's quite painful. I hope it makes you feel better to know that someone understands your symptoms. Have a blessed day!

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