Grateful to have found this site, as hands on experiences is still the best in my opinion. And while I know there are many others worse off, the new losses are starting to get to me.
Over the last few month have strange things, like daily headaches, vertigo and dizzyness, balance issues, numbness and pins and needles on the left side of my body, mostly hand, middle left toe and in my face. Also crazy spasms, lots in my rib area, full back that bends me backwards, my right arm and neck/throat area. Now numbness in my lower lip. But the last few weeks I have weakness in my legs and the left leg gave out while working. Fatigue and intolerance to heat is for years. I blamed a lot of things on being a diabetic and never mentioned "minor" things to my GP. I also dealt with endometrial cancer and so was preoccupied with that. But with almost falling when my leg gave out, combined with the unexplained blurry vision, I ended up again in the emergency.
My opthalmologist said no nerve damage from the diabetes, but optic neuritis 8 years ago, that came back twice in the right eye.
The first emergency room visit was in January when these headaches, dizzyness and paresthesias started. They put me on an antibiotic "just in case" it was an inner ear infection, which did nothing. Than blood pressure medication, as that was high and my GP said it can just come from that. The high blood pressure is now under control, but none of the symptoms left. The recent two emergency visits resulting in a suspected diagnosis of MS, which shocked me a bit. They had blood work back ruling out B12 deficiency, normal thyroid levels and normal electrolyte levels. Also my GP had ordered a CT as he was now getting suspicious of a brain tumor, given the cancer history. Thankfully this came back as no stroke and no brain tumor.
Once they done a full medical history and a neurological exam and the tests that ruled other possible options, they came back with MS and I was put on a low doze of Amitriptyline to deal with the nerve pain. But this does not work for me, the spasms got worse and I had an arm tremor, as well as being very drowsy. I still try to work and so I had to go off that. But working gets difficult now, since I can not stand long or walk properly for longer periods. They send me to the urgent neurology clinic and will have phone appointment with the neurologist next week. No one explained why they can not find a knee reflex on my left side and a weak one on the right knee. The headaches are somewhat better and the spasms are less again, but until an MRI and spinal tap confirm a diagnosis I feel angry with myself and frustrated as I don`t know what the body does next.
They were not comfortable to do the spinal tab in the emergency room and want this as a planned/booked procedure.
Sorry for the long rant... I think I just need an answer now. While I am grateful it isn`t a brain tumor, this long wait times for anything really play on the mind. I will be happy to learn by reading about other peoples stories. Thanks for reading;0)