PPMS
I often look through the forums on here but, it seems, the vast majority of stories revolve around those with RRMS. Is there a specific group for Progressive idiots like myself?
Ant
Hi,
(Ant)! I am not aware of specific groups just for PPMS, but I wouldn't be surprised if they exist. I will say that we definitely have members and contributors here with PPMS and here's one contributor's story about living with the less common form of MS -- https://multiplesclerosis.net/living-with-ms/rare-primary-progressive. Check out the 100+ comments at the end of the article, many from folks living with PPMS. You're definitely not alone here! And another one of our frequent contributors, Mike, often writes about living with PPMS -- https://multiplesclerosis.net/living-with-ms/ppms-considerations. Also, here's a direct link to a collection of our information, articles, and discussions on PPMS -- https://multiplesclerosis.net/navigating-life-with-ppms. If I happen to find a specific PPMS online community, I will come back and let you know.
You may be in the minority here, diagnosis-wise, but, as I said, you're not alone!
Best, Erin, Team Member.Thanks Erin. Xx
