SSDI taken away!?
My daughter was approved for SSDI in 2019. She just had her 3-year review, and they took away her benefits! She is disabled not only by MS but serious mental disorders as well as spinal issues.
Is benefits cessation a common thing among MS patients? It seems outrageous to me.
Any advice?
They can do that?!?!
Nooooooooo i am so sorry… i was denied ssdi and trying to apply again to get medicare… 😭😭😭😭
, oh no! I have to be honest; I have never come across another community member here that has had their SSDI benefits revoked like this. I assume they gave reasons for their decision? I would definitely read through the paperwork of denial they may have sent you (if they sent you one). I would call the office for an explanation, if you haven't done so already and I would write down everything they say in that call or record the call, if it is legal to do so in your state (to clarify, most states have one party consent laws, which mean if one person is okay with recording {you, in this case}, you are legally allowed to record a call. The other states may require that you ask permission of the other person before recording. Please check your state laws if you go this route.
I would make sure you get in writing, if you haven't done so already, ALL the reasons given for revoking your daughter's SSDI benefits. Then, based on that information, you or your daughter can go to her doctor and work to provide the documentation necessary to show that she still qualifies for SSDI.
A person can lose their benefits if they marry or return to work, if you go to prison or mental health institution, if you reach retirement age, or (here's one I didn't know) if your volunteer efforts are considered "gainful activity".
Please keep in mind that I am not a legal expert or an SSDI expert. But, I hope this information at least gives you some ideas to consider.
Keep us posted on your daughter's situation (if you feel comfortable doing so) and good luck getting this sorted out!
Best, Erin, MultipleSclerosis.net Team Member.For some reason, none of my posts uploaded when you first answered. We found out why she lost it. It is unbelievable.
