It’s time to change some of the terminology, re: MS!!
On my last MRI, my neuro, who I am very happy with said, I was stable. The reason was that I had no new/active lesions.
False sense of security
This gave me a false sense of security. I had to call and ask her, "If I am stable why is my walking getting worse?” I was then told I probably had moved to SPMS
, but am still termed stable. After a year of stress
, my elderly parents had a near-fatal accident in Fl. My brother – who doesn’t have MS – and I alternated visiting them every other month until they have almost fully recovered. My brother is in CA, I am on the East Coast.
Considered stable though my disability had progressed
I traveled mainly by myself, utilizing airline wheelchair assistance
, mostly by myself with a few rare occasions when my husband could accompany me or when my brother and I could overlap our visits. So why was I still considered stable when clearly my disability had progressed
? Terminology needs to be more accurate. Let me know how you feel.
Thanks and try to stay positive, Lisa 😜