Hi, Judi ()!
I don't blame you for being apprehensive, but if you wanted to learn more about the ins and outs of suprapubic catheters, you came to the right place! A number of our members have experience using a variety of catheters, including suprapubic ones. Here's one article on the topic and please make a point to check out the many member comments at the end of the article for more community insight on the topic -- https://multiplesclerosis.net/living-with-ms/suprapubic-catheters-pros-cons. Also, one of our members shared about her cross country road trip and she had a suprapubic catheter. She only shares briefly about the catheter, but I like her story because it shows that having a catheter doesn't have to negatively impact your life. In fact, it can sometimes offer you some freedom and independence! Here's her story -- https://multiplesclerosis.net/stories/road-trip-with-ppms. To put it bluntly, having to have a catheter is never ideal, but it doesn't have to be terrible either. And you are in good company here! So, if you have any specific questions, I bet someone here can answer them!
Good luck and do keep us posted on how things go, only if you feel comfortable doing so.
Best, Erin, MultipleSclerosis.net Team Member.