Tell us about your symptoms and treatment experience. Take our survey here.

caret icon Back to all discussions

Things that drive me crazy - a rant

I cannot open pill bottles, pop pills out of their strips.
I cannot open tins.
My wheelchair is too wide to get in to most places.
There is not a neighbour on my street whose doorbell I can reach or house I can go into ---Have you heard about that lady who has to stop drivers going down her street if she needs help?
Nevermind potholes on roads and dangerous cambers on pavements.........the list could go on and on

So when all that piles up on me, I am not sure if Iwant to scream or cry. Probably both

  1. Those things would drive me crazy, too, ! I think most of us that don't rely on mobility aids have been guilty of not recognizing the physical challenges our environment places on individuals that use wheelchairs, walkers, canes, etc. And even in the U.S., I know that ADA compliant doesn't mean that space is truly accessibility friendly for everyone.

    And don't even get me started on the blister packaging for many pills. I can't open those things to save my life!

    I am glad you started this thread! I don't want to co-opt it, but I do hope other community members share their pet peeves, too! We all need a safe space to rant once in awhile.

    Thank you for sharing!

    Best, Erin, Team Member.

    1. I'm so glad that you decided to share this here. The daily reality of living with MS is a heavy load to carry, so you need to get vent sometimes. And this is certainly a community of people who get it.

      You make all such valid points too. My heart breaks hearing about each struggle you experience, but especially the ability to go to your neighbor's house or simply to ring their doorbell.

      I'm sure you've thought of all the alternatives already and workarounds, but I just wanted to let you know that we see you and we are sending you lots of support today and everyday.
      - Alene, moderator

      1. Oh yes to ring the bell I have to carry a broom handle around for me....oh and I do wear purple so I'll lrave it to your imagination

        1. , the broom handle trick is a good idea! That's pretty creative!

          Best, Erin, Team Member.

        2. you have gotten quite creative and resourceful for sure. You are the definition of resilient!
          - Alene, moderator

      Please read our rules before posting.