Hi everybody
Guess I just wanted to rant here. I feel very misused by my MS doctors.. I was diagnosed with RRMS in 1998, the only symptom I had was L-Hermittes Sign. Doctors didn't feel I was sick enough to warrant treatment. Fast forward to the early 2000s (sorry I can't remember exact dates) when I had more advanced symptoms of vertigo and vomiting. Again no treatment prescribed. Now of course I have more debilitating symptoms, double vision, drop foot and cognitive issues and they say I have transitioned into SPMS and there aren't any meds approved for it. So I guess now I just wait for the MS to progress. Doctor says I'm good for 5 years and after that I'll probably be in a wheelchair. WHAT!!! When did I transition and why couldn't they do something about it then. I'm angry but of course that doesn't help. I have never been prescribed ANY MS drugs! And here I am flailing about in a sea of MS symptoms. If I had to do it over I would, of course, be more involved in my treatment but who knew? I thought they were doing their best by me, NOT...Anybody else have this sort of thing happen to them?