What are others' treatment experiences and recommendations?
I'm supposed to get some sort of treatment soon because I found out of have MS like 5 months ago (I'm twenty-one now). Anyway! Could someone tell me how they are doing on treatment? And what is the name of your treatment? I'm thinking about Ocrevus? But I'm scared of the brain virus thing :/
Hi OofMs,
I've had MS for close to two decades (I too was diagnosed at 21). I've been on numerous treatments (Avonex, Copaxone, and now Tysabri). I would recommend asking your doctor what he thinks would be your best bet. Ocrevus is the latest and people are doing well with it. The important thing is to get started on something sooner than later. While a lot of people fear PML (the "brain virus thing"😉, the chances are really pretty low and most of those cases happened before they knew it could be a problem. They actually have much better tests know and you will be monitored (you can read more on that here: https://multiplesclerosis.net/living-with-ms/pml-jc-virus-misconceptions/).
When choosing one of the disease modifying drugs (DMDs), the most important thing is to choose something you can tolerate and stick with. No everyone can inject them selves, some people hate IVs, etc. As for tolerating them, you won't know until you try them. That's the other thing, you may need to try several before you find out what works for you (or you may not). Good luck and remember that the most important thing, is to get on one.Thank you so much for answering. I talked to my doctor about getting treatment soon. I was so worried about the PML thing, but I read that one article that you wrote about it. I felt a bunch better after reading. It's just so scary to suddenly have something like this pop up, and all the awful stuff that comes with it. For me, it's like I want to pretend it's not happening, but as it get worse it harder to ignore. Thanks again!
