Trigeminal Neuralgia

Hi Nancy, these are good questions to ask your treating physician. People experience TN in different ways and use various treatments to find which ones work best for them. If you haven't already, call your neurologist's office and discuss your concerns with the nurse or make an appt. to talk to the doc. I haven't suffered from TN myself. I hope one of our readers with TN will respond.

--Kim, moderator

hello I have it too and I have to get a nerve cut I'm my cheek. Some meds help it but I'm sure they won't much longer. Otherwise I'm going to need double the dosage soon. My body eats meds very quickly. I also need more then the average person. It's some weird family trait that I'm trying to get figured out. However trying to get someone to do the testing for a missing or extra gene or chomazone. I have a paradoxical reaction to most meds, they don't work, or we get the 1 in a million side effect. We all are like that. Plus need a lot more meds then they will give me for my height and weight. They need to throw those charts away. Good luck. Hope you can get some help. I believe there are 3 options. Meds, a balloon or cutting it out. I need it cut out. I've been dealing with this for years. Hope you get relief faster then I have been able to.