Tysabri
Hello, I am on the Tysabri drug and am up to number 14 infusion, At my last one they queried my low blood pressure, since I have been having daily on going issues, headaches, dizziness and my walking is terrible?
My BP ranges from 80/55 to mid 90s over mid 60s my pulse is generally 64 to 70,
My last set of blood tests were ok, Now the MS Nurse seems to think it maybe Heart related???
Has anyone had low blood pressure issues with Tysabri ?
Thanks
Hi kea21, it looks like low blood pressure could be a side of an allergic reaction to tysabri (https://www.tysabri.com/en_us/home/about/safety-side-effects.html), so it's probably best to talk to your MS specialist about it. You may still need to have another doctor do some tests for heart related issues as well, in order to rule out anything. It might be good to start with seeing a general practitioner about your low blood pressure and see what they say.
Hi kea21, I always have tended to have high blood pressure and my primary doctor has me taking medication to lower my blood pressure. The day of my Tysabri infusion, my blood pressure goes up too much and I have to take a pill to lower it. I know there are also medications that can be prescribed to raise your blood pressure. Be sure to see a doctor to see what can be done about your blood pressure.
Hey KIA21,
I've just been diagnosed with heart trouble. I'm on Tysabri. I've been on Tysabri for 5 years. I'm older but still, I've never had heart issues. Now suddenly I have Atrial Fibrillation, a heart murmur, and aortic issues. I see my doctor tomorrow for MS in the morning and my heart doctor in the afternoon. One way or another I'm getting to the bottom line.
I went from dizziness and exhausted and having trouble tracking with my eyes to a MS diagnosis at 67yrs old to heart issues and MS. RATS!
, I am glad you commented on this thread, even though it's an older one! Information like yours can be invaluable to the newly diagnosed as they weigh various treatment options.
I am so sorry you are dealing with heart issues on top of your MS and I do hope those issues can be resolved relatively easily. Keep us posted on how your appointment goes, if you don't mind doing so.
Best, Erin, MultipleSclerosis.net Team Member.
Thank you for your kind words, Erin. My appointment went pretty well today. The heart people said that my one MS medicine was interacting with my heart meds.. I had to stop tramadol. I was seeing things that were not there and having dreams in very vivid color.
The heart meds were changed to help with fluid build-up to a stronger diuretic and the one that helps the heart beat regular was upped to a higher dose. So far there is only minor damage to the heart which is good.
I keep wondering if the MS played a role into the heart issues. (A-fib and some aortic stenosis). It could be worse....or better, but at least it's being treated. That's it for now. Thanks again.
