Weakness
I was diagnosed with Relapsing remittant MS last year, although symptoms of MS were noticeable as far back as 2015.
My question is: I have considerable leg weakness and stumbling, could I be progressing to a progressive form of MS.
Thank you.
Hi,
!
First off, I am sorry you are dealing with some worsening symptoms. Have you talked to your doctor about them? That's always our first recommendation when someone is experiencing a new or worsening symptom.
Also, I can't really offer any medical opinion, for your safety.
That said, a worsening of any one symptom does not necessarily mean your MS is progressing to a more aggressive form of the disease. I know the prospect can be pretty scary!
I would definitely talk to your neurologist, if you haven't already done so. He/she may be able to have you come in for some testing to see what's going on and what can be done about it.
Best, Erin, MultipleSclerosis.net Team Member.Hi Erin, thankyou. I am seeing a neurologist this week, I am curious as to how many people suffer from the wobbly leg sympton which makes standing for any length of time difficult.
Best Regards
Mike
Hi Mike (
). Leg weakness is a common symptom of MS both for people with the progressive type and the relapsing type. The MS journey is never the same for two people, so it is hard to say what it means for your future. Your leg weakness might be part of a relapse, which would mean it's possible that symptom will eventually resolve, but it's equally possible that your leg weakness is permanent, due to nerve damage that occurred during a relapse or steady progression. Your neurologist might not even be able to tell you for sure, unfortunately. For most people, it seems to come and go without a lot of warning. Here is an article from one of our advocates about leg weakness that might at least help your feel less alone: https://multiplesclerosis.net/living-with-ms/what-does-leg-weakness-feel-like. I hope your neurologist at least prescribes physical therapy to keep your leg muscles tone. You want to make sure they are strong when you are able to walk and stand for longer periods. I wish I had better answers and I hope this resolves for you. Thinking of you and wishing you the very best. - Lori (Team Member)
Hi Lori. Thank you, and thank you to the link to Devin's story. It's very comforting to know we're not alone in this disease and that others have similar symptons. I, like Devin, was always fit and ate well, so I was surprised that the leg weakness which seems to come and go, would be so troublesome.
Kind Regards
Mike
