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The Itch

The Itch

Many people in the MS community have described an uncontrollable itch that feels like bugs crawling all over! Brooke’s latest comic illustrates just that – and the unexpected silver lining that can come along with scratching.

The Itch - Comic 1


The Itch - Comic 2


The Itch - Comic 3


The Itch - Comic 4


The Itch - Comic 5


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Comments

  • torrescarolyn
    4 months ago

    The itch is real. For me it is like bugs are inside my skin eating me up. I just want to RIP off my skin. It has always happened on my hands though and it can last up to an hour. Sometimes I scratch so hard I end up bruising really bad. What has helped me alleviate my itch is using a rag or a fork for scratching. Ice nor lotions has worked out for me.

  • robynz
    4 months ago

    You mentioned that your neuro gave you a script that helped to stop the itch. Do you mind sharing what it was, please?

  • Lyssaann
    4 months ago

    Hi, I just had to weigh in this one. I had this uncontrollable itching, started in my early 40s, took me over 10 years to figure out it went with my MS, which I have been diagnosed with since I was 15. I finally found that oatmeal based products work wonders. Aveeno body wash, shampoo, lotions, and antiperspirant. really helps keep the itch down, I thought I was going crazy, none of my doctors could find anything. Then i found an article on line about it being a hidden symptom of the MS. Made feel so much better and it was something I was able to pass on to my MS support group a little later that year. Love the comic.

  • Brooke Pelczynski author
    4 months ago

    Omg heading to wallgreens now to buy all these goodies!

  • LuvMyDog
    4 months ago

    It hits my back, shoulders and rib cage but mostly at night. After a good scratch session with a wooden back scratcher, it’s okay for awhile.

  • flbrown
    4 months ago

    Have you tried a body scrub? I takes the dead skin off. Maybe it will help a lil’

  • doublebreve
    4 months ago

    I got a tip it get a long handled brush & brush skin upwards towards heart. It helps circulation & bonus…polishes off dry skin. I find it helps calm my nerves endings… always ‘acting up’ like they
    ..Thx for cool gel pack tip too!

  • Darrell
    4 months ago

    I have had ” the itch” a couple of times. Drove me crazy! I found what really worked was to put ice-paks or gel-pacs (cooled in the fridge) on the itchy areas.

  • dzypny
    4 months ago

    My so called itch , turned out it to be vitiligo.as if M.S. was a good choice.
    I wish all the itchers ….. Pease!

  • Carole
    4 months ago

    My itching occurs only after a shower or bath, lasts 20 to 30 minutes and is very severe. We have installed Berkey water filters on the shower head which have cut down on the number of episodes.

  • Shelby Comito moderator
    4 months ago

    Thanks so much for sharing your experience, @f01336. I’m so glad to hear that you’ve found something to help alleviate some of the discomfort. Thank you for sharing here! Best, Shelby, MultipleSclerosis.net Team Member

  • D-bob
    4 months ago

    Anybody else itch in one place but have to scratch in another place to relieve the itch?

    There’s a spot on my left side that itches but I have to scratch an area about 8 inches away on my stomach area in order to to relieve it.

    I have other areas that do the same thing.

  • New to me
    4 months ago

    Totally! Sometimes it take me several tries to find the right “spot” then it’s heavenly lol..

  • Sukismom2010
    4 months ago

    I’m so tired of being TIRED

  • mollyculelove
    4 months ago

    YESSS!!! This is dead on perfect!! Lol!! Before I was diagnosed I thought I had caught fleas of ticks or worms or something scary from my dog because he always slept on my legs and in my bed. My legs were the worst but the rest of my body too and at night my legs they would itch and nothing would make them stop. I would have to layer them in socks and leggings and pants and blankets then get my German Shepherd to lay on them so I could sleep. Now I’m diagnosed a little over a year and get my second Ocrevus Infusion tomorrow actually for pretty aggressive RRMS that developed on my brain mainly. But I often have dreams about spiders when my itching and leg fasciculations get super bad at night…and spiders are up there on my list of things that I’m terrified of! So thanks for this! Made me laugh! Someone who gets it!

  • flbrown
    4 months ago

    Don’t take hot showers maybe that’ll help. This is the craziest symptom. Itching, that would drive me to drinking!!
    Now I remember when my sister had the chicken picks all she did was scratched, she found relief when my mom had her take a bathe in oatmeal..

  • mollyculelove
    6 days ago

    Oh I definitely found out real quick that, hot showers and heat in general is the enemy of MS..makes you feel like passing out and amplifies everything! But oatmeal sounds kinda nice…especially for itching!

  • Shelby Comito moderator
    4 months ago

    Hi @mollyculelove, thanks so much for sharing! As awful and uncomfortable as that sounds, it can be so comforting to be able to say, “What! You too!? I thought I was the only one!” So glad this brought a little humor to such a frustrating symptom. Thanks again for sharing – you’re not alone! Best, Shelby, MultipleSclerosis.net Team Member

  • mollyculelove
    6 days ago

    I think that’s what is so great about this site!

  • mstini2013
    4 months ago

    I have the itch…..I hate it. This cartoon is a great depiction of how it feels or must look to others lol!!:) At first I thought it was bed bugs fleas?? It happens at night so it interferes with my sleep. My head though, man, i sometimes wonder how it is that I have any hair on my head at all. The thought of having head lice crossed my mind several times too before I figured out it was due to the MS. Might I add that at the time I had school age kids so it wouldn’t have surprised me at the time 🙂 Needless to say, it was not the case. After an unsuccessful try with benadryl , I finally mentioned the itching problem to my neurologist. He gave me a prescription that really helped with the itching. After years of suffering I finally got relief. Hence the importance of reporting symptoms to your doctor, no matter how trivial they may seem. I hope you all can find relief!!! 🙂

  • wanda1950
    4 months ago

    Would you mind sharing what the prescription was? It about drives me crazy & I have actually scratched till it bled. My doctors tell me it is not MS and it scares me because I find it as a symptom often when reading about MS. How can they not know this symptom?

  • mstini2013
    4 months ago

    loved your blog Matt about lifting us up instead of competing…..great post!!

  • Jorja
    4 months ago

    I thought it was just me. I feel it especially in my face and I keep swatting my hair out of my face. I now have a buzz cut but I still feel the bugs.

  • Alina Ahsan moderator
    4 months ago

    Definitely not just you, @jorja! A lot of people in the community have shared that they experienced awful itching but never knew that it was related to MS. It can be such a frustrating symptom to deal with!
    -Alina, MultipleSclerosis.net Team Member

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