MS In America: What's That?
An MS diagnosis is a shock, but what can make it more difficult is the lack of information available for patients and their loved ones. Many people quickly jump online to research the ins and outs of MS but have trouble finding helpful information that can tell them what to expect. Even more difficult can be finding someone who actually lives with MS to connect with and share experiences.
How can a survey help?
The MS In America survey is an annual survey on MultipleSclerosis.net that seeks to close some of these gaps. The survey covers “basics” like diagnosis and treatment experiences, but also dives into the nitty-gritty, like the emotional impact and the seemingly 'small' day-to-day challenges.
Each person that takes the survey contributes to a better understanding of MS and can help others who are going through it feel less alone. Sharing experiences in the survey can reveal how similar each person’s journey with MS can be, as well as the differences that make each journey unique.
What will the survey ask me?
The survey will ask about diagnosis, symptoms, symptom management, quality of life and relationships, healthcare professional engagement, and treatment awareness and experience. We do not require your name, address, or other personal information.
You do not have to take the survey all at once. You are able to bookmark the survey in your Internet browser and return when you are able, resuming where you left off.
What happens after I take the survey?
After the survey closes each year, the Editorial Team at MultipleSclerosis.net takes your responses and creates an infographic filled with information about life with MS. But that’s not all – over the year, we publish articles based on learnings from the survey. Each article published using responses from the survey contributes to the information available to those affected by MS and helps them connect with those who have walked the same path.
How do we use the In America Survey data?
Survey responses help us and our partners better understand the MS community. All survey responses are kept confidential, reported only in total (your specific responses will not be reported individually), and will become the property of Health Union, LLC.
Do you live with any comorbidities aside from MS?