Living With MS and Now Macular DegenerationLife might feel simpler and less stressful if multiple sclerosis were the only medical condition I had to manage. Alas, it is not. I have been collecting other chronic medical...Reactions0reactionsComments7 comments
National IV Nurse Day, January 25: Honors MS Infusion NursesFirst established in 1980, January 25 of every year marks the day when those with MS using infusion treatments can publicly recognize and celebrate the IV nurses who’ve helped them...Reactions0reactionsComments3 comments
MSAA’s “Living Rural With MS” Webinar Series is Now Available to Watch On-DemandWhen living with multiple sclerosis in a rural or underserved area, an MS specialist may be several hours away from your home, making it difficult to seek treatment or find...Reactions0reactionsComments0 comments
A Bit of Empathy Goes a Long WaySometimes multiple sclerosis makes me numb. At times, I can't feel parts of my body like my feet, legs, hands, and arms. Yet, there are times that I feel too...Reactions0reactionsComments5 comments
A New Look for How I Control My MS BladderI will admit that I am vain. I care about my appearance and like to look nice, but I never thought I would need Botox less than a month after...Reactions0reactionsComments63 comments
There's No Break With Chronic IllnessOne of the toughest parts about having a disease like multiple sclerosis is that it never goes away. Sure, some symptoms may ease up, but it never leaves. Many folks...Reactions0reactionsComments24 comments
MS Life: Adaptive Clothing and Fashion HacksOne of my favorite reality shows is Project Runway. I love watching these designers, under the crunch of limited time, materials, and budget, create beautiful garments literally from thin air...Reactions0reactionsComments6 comments
The Challenges of Going It Alone With MSEven under the best of circumstances, living with a disease like multiple sclerosis can be extremely challenging. The thing is though, there are an awful lot of folks fighting this...Reactions0reactionsComments21 comments
A Lesser Known Symptom of Sensory OverloadMy Big Mac Meal order flashes on the screen while a disembodied voice booms “$8.36 at the first window.” “Thank you,” I say cheerfully, and pull forward in the drive-thru...Reactions0reactionsComments35 comments
Seasons Greetings, MS: Blessed to Enjoy Another HolidayThere are some people that are just 'over' the holidays. The pandemic and its risks in addition to the recent surges and variants, emotional unrest relative to whether or not...Reactions0reactionsComments2 comments
You Are When You EatWhen Mr. Big died on a Peloton bike in the Sex and the City redux, fans were outraged, and the manufacturer of the bike was put on the defensive. Peloton...Reactions0reactionsComments6 comments
Why Is PPMS Hard to Diagnose?While relapsing-remitting MS (RRMS) causes acuate neurological episodes which can last for hours, days or months, primary progressive MS (PPMS) is more gradual. Symptoms continually worsen over time and can...Reactions0reactionsComments14 comments
Equine Therapeutic Riding: A Horse Lovers’ Fantasy Come TrueAs someone with a high level of disability, I floundered for years trying different adaptive sports and activities desperately attempting to find something that gave me joy. Before my MS...Reactions0reactionsComments18 comments
Aspiration, Pneumonia, and Multiple SclerosisIn my long-time battle with multiple sclerosis, I’ve had my share of scary moments, times when MS has impacted me enough to make me have a concern for my life...Reactions0reactionsComments7 comments
MS Comic: Holiday StressWe all live with stress stemming from many different sources, but the holidays can be an especially hard time. Beyond the regular stress of living with MS, there can be...Reactions0reactionsComments2 comments
Whose MS Is It Anyway?There is much to be said about MS as an identifier. Are you a patient? MS warrior? An advocate? A caretaker? Or is MS not even part of how you...Reactions0reactionsComments7 comments
My Bladder Botox Experience(s)Do you ever wonder if there is a better way to treat your MS symptoms? I am always looking for the new and improved processes that are out there. I tried another...Reactions0reactionsComments7 comments
Keep Floating When Times Are ToughIf you live with multiple sclerosis, at some point, you are bound to encounter some rough times. Maybe you’re having an especially long exacerbation, or you’re fighting for a correct...Reactions0reactionsComments29 comments
MSAA’s Improving Lives Through Art Series Renewed for Spring 2022It may be chilly outside right now, but the Multiple Sclerosis Association of America (MSAA) is looking forward to a wonderful new series of Improving Lives Through Art virtual events...Reactions0reactionsComments0 comments
Thinking Through a Smudge: Part 2Recently, I wrote about some of the ways the cognitive problems I’ve developed because of multiple sclerosis have affected me (including one example that explained how my thinking is like...Reactions0reactionsComments10 comments