The Start of Something NewI have been on Gilenya since it came out. For me, that has been a little over ten or so years. It has been an excellent medication for me and...Reactions0reactionsComments6 comments
The Literally Invisible SymptomWhen your skin is dark, you miss out on an important multiple sclerosis symptom. Itchiness caused by a rash is not uncommon. There are many types of rashes with myriad...Reactions0reactionsComments2 comments
Combating Positivity PornLiving with a chronic illness, like multiple sclerosis, can be filled with challenges. Sure, there are the rough symptoms like pain, fatigue, spasticity, and many others to contend with, but...Reactions0reactionsComments24 comments
Bringing My Triplets Home and Restarting My MS TreatmentsThis is Part 3 of a 3-part series about Calie's experience giving birth to her triplets. Part 1 talked about her pregnancy and going into labor. Part 2 discuss the...Reactions0reactionsComments2 comments
How MS Made Me Slow Down for the Holidays...LiterallyIt’s been more than seven years since my diagnosis, but I recall certain details from my first Christmas following that date like they’d happened only yesterday—an unexpected gift from an...Reactions0reactionsComments6 comments
Grief Chronicles - To Say or Not to SayMy beautiful mother recently transitioned. This is the most devastating loss I have endured thus far. I rejoice knowing that she is free from pain and suffering and I will see...Reactions0reactionsComments6 comments
Devin's Tips for Battling IsolationAs of this writing, I haven’t left my house in close to two weeks (I’ve stepped outside, but I’ve not gone anywhere and had the sort of social interactions that...Reactions0reactionsComments16 comments
How MS Affects My Throat and MouthI’ve embarrassed myself a gazillion times just by opening my mouth. I mean, I never had the most polished social skills on the planet, but after MS took up residence...Reactions0reactionsComments9 comments
Multiple Sclerosis and the Epstein-Barr VirusMultiple sclerosis (MS) is a chronic autoimmune disease. The immune system exists to defend the body from potentially harmful organisms like bacteria and viruses. In autoimmune disorders, the immune system...Reactions0reactionsComments3 comments
Trekking Poles: Not Just For HikingRecently I was looking through photos on my computer with the intent to clean out or delete the ones I didn’t feel the need to keep in my digital shoebox...Reactions0reactionsComments0 comments
Bathroom Burdens: Chronic Constipation and MSMultiple sclerosis can cause all sorts of symptoms that in turn can create problems. One such symptom is chronic constipation. On too many occasions, evidence of this problem has surfaced...Reactions0reactionsComments50 comments
Tips for Keeping Up with the Latest MS InfoIt is quite a struggle some days to stay current on the latest studies, webinar presentations, and newly-released MS disease-modifying therapies. As a patient advocate, I want to keep up on...Reactions0reactionsComments3 comments
Trouble With Social Cues: Social Cognitive Deficits With MSRecently, I was talking to another person with multiple sclerosis, and she mentioned that she believed she was having trouble understanding when people were joking. She then asked me if...Reactions0reactionsComments36 comments
I Do Not Know How to Ask for HelpIn the multiple sclerosis community, asking for help is highly encouraged! We are generous with each other. We share our time. We share our wisdom. We share our tips. We...Reactions0reactionsComments19 comments
How I Can Tell I'm Having a RelapseFolks, to be completely honest, I can’t think of a single relapse that I could identify as being one. My hat goes off to any of you who can. You...Reactions0reactionsComments25 comments
MS Spasticity: Down With the StiffnessToday is one of those days that required an extra cup of coffee for me to even think about going through with my normal routine. No, it’s not MS-related fatigue...Reactions0reactionsComments14 comments
MS, the Birth of My Triplets, and the AftermathI will never forget the fear and anxiety I felt knowing not only was I about to welcome three babies into the world, but that they were premature and my...Reactions0reactionsComments2 comments
Disclosing MS On the Job: Why I Did, and Why I Didn'tThe question regarding disclosure of your MS at your workplace is really a lot more complicated than simply deciding to ‘fess up. I was diagnosed with MS two weeks before...Reactions0reactionsComments15 comments
What Having Poor Eyesight Taught Me About Being a Proactive Patient, Part TwoIn the first part of my story, I told you about how growing up with poor eyesight taught me important lessons about communication between patient and doctor. It also taught...Reactions0reactionsComments2 comments
Economy of Movement & Conserving Energy to Fight MS FatigueWhen you live with multiple sclerosis, the fight against fatigue can seem like a never-ending battle. If you’re like me, you are always looking for new ways to improve your...Reactions0reactionsComments24 comments