Caregivers and BurnoutCaregiver: what’s the first thing that comes to mind when you see this word? This may vary depending on whether you are the caregiver of someone diagnosed with multiple sclerosis... By Dixie Willis, MA, LPCC, NCC3 min readBookmark for laterReactions0reactionsComments0 comments
You’re Invited: Girls Night in the Hot Tub (with a Heat Sensitivity)Imagine getting an invitation to a girls' night out with your closest friends, where you all planned to catch up on life, have some snacks, and unwind in a hot... By Alene L. Brennan, RYT3 min readBookmark for laterReactions0reactionsComments29 comments
Community Spotlight: First Descents and Its Programs for People With MSWe sat down to talk with Kristin McMaster of First Descents, a nonprofit that provides free outdoor adventures for young adults (ages 18 to 45) living with health conditions such... By MultipleSclerosis.net Team4 min readBookmark for laterReactions0reactionsComments0 comments
Supporting My Support Partner: Part 1Living with multiple sclerosis (MS) has made it important for me to accept assistance and support. I had to learn my own limitations and when to ask for what I... By Anita Williams3 min readBookmark for laterReactions0reactionsComments5 comments
My Experience with DMTs for MS and What I Wish I Had KnownThroughout my multiple sclerosis (MS) journey, I’ve been on a variety of different medications for MS called disease-modifying therapies (DMTs). DMTs come in several forms including injectable medications, oral medications... By Matt Allen G4 min readBookmark for laterReactions0reactionsComments64 comments
My Nurse Stole My DignityI've lost a lot in my 23-plus years of living with Multiple Sclerosis. My career, numerous partners and relationships, my ability to run (and sometimes even to walk), and travel... By Devin Garlit3 min readBookmark for laterReactions0reactionsComments46 comments
MS As It Relates To RuthlessnessMS is a chronic, unkind disease to live with. You're moving about in life, and it accosts you. Just happens upon its unsuspecting 'victim' for no known reason. When it... By Dianne Scott3 min readBookmark for laterReactions0reactionsComments4 comments
Isolation and FatigueMental health is one of the most critical pieces of our overall health we can tend to, but it is often glossed over quickly or not talked about at all... By Laura Kolaczkowski2 min readBookmark for laterReactions0reactionsComments27 comments
MS Versus the Swedish Healthcare SystemIn this article, I'm talking about the Swedish healthcare system in general terms. Denied insurance, medical debt, flare-ups due to financial stress, or getting approved for disability. These are just... By Fredric Andersson3 min readBookmark for laterReactions0reactionsComments6 comments
People Will Get Tired Of You Being SickLiving with a chronic illness like multiple sclerosis often means that you have to face some very hard truths. You might have to stop working. You have to go to... By Devin Garlit3 min readBookmark for laterReactions0reactionsComments18 comments
Life With MS Fatigue Feels Like a Story for OprahI hate when extreme fatigue messes up my whole day. Today is no different. I had things to do. A list of places to go and people to see. But... By Nicole Lemelle2 min readBookmark for laterReactions0reactionsComments15 comments
Learning Not to Catastrophize with MSSometimes everything in my life with multiple sclerosis (MS) works out so well it’s like all the pieces just fell perfectly into place on their own, and it feels awesome... By Matt Allen G5 min readBookmark for laterReactions0reactionsComments18 comments
Using My MS VoiceMS is the abbreviation for the chronic degenerative autoimmune disease multiple sclerosis. However, those very initials could also stand for many snatches, because that's exactly what it does: it snatches... By Dianne Scott2 min readBookmark for laterReactions0reactionsComments2 comments
Appointments, AppointmentsIt is managing the symptoms that take up the vast majority of my attention. Just living every day in this body takes time and effort. Heck, sleeping still requires me... By Anita Williams2 min readBookmark for laterReactions0reactionsComments1 comments
How Disease Onset and Rejection Initially Contributed to the Loss of My Sex DriveSexual desire has always been an important part of my identity. Something that makes me feel like the spark plugs are all firing away, a sure sign of my mental... By Kim Dolce3 min readBookmark for laterReactions0reactionsComments5 comments
MS Changes Our Life, Yet We Can Still be a Positive InfluencerSome health illnesses are with you for a short period, then you heal and move on. MS, as you well know, sticks around forever, and changes your life. However, MS... By Mike Russell3 min readBookmark for laterReactions0reactionsComments0 comments
Support From Family and Friends of a Loved One Diagnosed With MSWhen someone is diagnosed with a chronic disease such as multiple sclerosis, it can be a shock not only to the one diagnosed but also to the family and friends... By Dixie Willis, MA, LPCC, NCC3 min readBookmark for laterReactions0reactionsComments20 comments
A Care Partner’s Perspective to MSTen data points from the 2022 Multiple Sclerosis in America Survey (completed by 4,478 people living with MS) were shared recently. While I am sure that MS patients will discuss... By Gary Chester3 min readBookmark for laterReactions0reactionsComments5 comments
When MS Stops You From Being ThereWhile reading through our forums the other day (and I can’t recommend them enough, we have some great discussions there!), someone mentioned their concern over being able to attend an... By Devin Garlit3 min readBookmark for laterReactions0reactionsComments7 comments
Mom Guilt with MSI’ve heard about mom guilt long before I ever became a mother. Whether a woman is a CEO of a business or her home, the unrealistic expectations to “do it... By Alene L. Brennan, RYT3 min readBookmark for laterReactions0reactionsComments4 comments