Not All Snowflakes are the SameSo I recently decided to make the switch from Tysabri to Lemtrada. I did not talk too much about it on my own blog because A) I just have not... By Matt Allen G4 min readBookmark for laterReactions 0 reactions Comments5 comments
Late-stage Multiple SclerosisYou may find this conversation unsettling, so please decide for yourself if you want to read on. I am discussing the worst-case scenarios for people with aggressive, progressive MS, and... By Laura Kolaczkowski4 min readBookmark for laterReactions 0 reactions Comments12 comments
Jaws: TMJ, Bruxism, Their Relation to MS – And Why We're Gonna Need a Bigger BoatIn my mid-1960s youth, a jawbreaker was a newfangled kind of gumball that was not a regular on my candy store wish list. Every Saturday afternoon, I’d walk or bike... By Kim Dolce4 min readBookmark for laterReactions 0 reactions Comments13 comments
Dealing with Guilt as a ParentThose of you that live with multiple sclerosis probably know that there is no 100% known cause of MS. However, there are some things that scientists have found have contributed... By Ashley Ringstaff3 min readBookmark for laterReactions 0 reactions Comments2 comments
Caregiver Perspective: How MS Affects the FamilyWhen a person gets MS everyone is aware of the emotional and physical adjustments that he/she has to make. However, any type of chronic illness affects not only those who... By Donna Steigleder6 min readBookmark for laterReactions 0 reactions Comments5 comments
Ocular Aura, Asymptomatic Optic Neuritis, and Multiple SclerosisLast month, a strange thing happened. I was sitting at the computer engrossed in my moderating/writing stuff, when suddenly my vision went wonky, sort of the way it does when... By Kim Dolce4 min readBookmark for laterReactions 0 reactions Comments9 comments
Building Your MS Healthcare TeamDo I need more than one healthcare provider? As far back as I can remember, I’ve had several doctors, or healthcare providers. Like most children, I had a pediatrician, although... By Lisa Emrich3 min readBookmark for laterReactions 0 reactions Comments2 comments
My Slide Into Secondary Progressive Multiple SclerosisEditor's note: This article was written and published in 2015. The MS treatment landscape is constantly changing, and you can read updated information about available MS therapies here. While in... By Nicole Lemelle2 min readBookmark for laterReactions 0 reactions Comments24 comments
The Emotional Effects of MSHow does Multiple Sclerosis affect people’s emotions? That is such a difficult question to address because the answer is so broad. Just like MS effects everyone differently (symptomatically) it effects... By Matt Allen G4 min readBookmark for laterReactions 0 reactions Comments1 comments
Preparing for your Neurologist AppointmentEveryone gets those reminder telephone calls before their appointment about what time to get there, to bring the most recent insurance card and copay, and of course the list of... By Laura Kolaczkowski3 min readBookmark for laterReactions 0 reactions Comments0 comments
Diagnosis: Denial, Its Consequences and SolutionsThink back to the beginning of this whole ordeal, back to that whack-a-do diagnostic disease pitch your docs threw out there that caused you sudden major brain freeze: Two or... By Kim Dolce5 min readBookmark for laterReactions 0 reactions Comments0 comments
How to Embrace the Power of the Clinical Trial on International Clinical Trials Day and BeyondWhen we pick up our prescriptions from the pharmacy, most of us do not think about where these drugs come from. Yet every pill or medical intervention – from cold... By Jeanne Hecht, MBA, PMP3 min readBookmark for laterReactions 0 reactions Comments0 comments
Love, Interrupted: When Should We Disclose MS on Dating Sites?There has been a lot of discussion about when to disclose your MS to an employer. It’s a complicated, nerve-racking subject; the decision about when to disclose a medical condition... By Kim Dolce3 min readBookmark for laterReactions 0 reactions Comments2 comments
Every Little Thing“My advice to other disabled people would be, concentrate on things your disability doesn't prevent you doing well, and don't regret the things it interferes with. Don't be disabled in... By Nicole Lemelle2 min readBookmark for laterReactions 0 reactions Comments5 comments
5 Pieces of Advice for the Newly DiagnosedI’m a few years into the MS game now, and I often find myself exchanging e-mails with people who have just been diagnosed. I never hesitate to extend a helping hand... By Stephanie Buxhoeveden, RN, MSCN3 min readBookmark for laterReactions 0 reactions Comments8 comments
The 50 Shades of MS PainMy mom and I both live with MS, but we have had extremely different experiences with diagnosis, treatment, and symptoms. I sometimes find it hard to believe what a difference... By Stephanie Buxhoeveden, RN, MSCN3 min readBookmark for laterReactions 0 reactions Comments40 comments
Driving and Multiple Sclerosis; IndependenceI can remember wanting nothing more than to get my driver’s license. I studied, I went to driver’s school, I studied some more, I practiced whenever I could and I... By Matt Allen G4 min readBookmark for laterReactions 0 reactions Comments29 comments
MS Research Update 2015 Edition from MSAAKeeping track of every MS-related study, trial, drug release, and other updates - and interpreting their clinical relevance to the MS community - can sometimes be stress-inducing. Fortunately, the Multiple... By Multiple Sclerosis Association of America - MSAA1 min readBookmark for laterReactions 0 reactions Comments0 comments
Becoming the Guy in the WheelchairI've recently heard from several people who are on the verge of needing wheelchairs, saying that my Wheelchair Kamikaze videos have helped them and their friends and families see that... By Marc Stecker-Wheelchair Kamikaze4 min readBookmark for laterReactions 0 reactions Comments1 comments
Why Is It Not a Relapse Every Time I Feel Worse?There are times when symptoms get a strong hold of me, making me feel worse for a few hours, and gets me worrying about relapses. Living with Multiple Sclerosis can... By Christie Germans3 min readBookmark for laterReactions 0 reactions Comments17 comments