Has anyone heard of an anti-inflammatory medication?

Has anyone heard of & possibly tried this anti-inflammatory med used in Japan? It’s also known to supposedly treat MS… want ask my neuro about it. I’m game to try ANYTHING to help us.


Community Answers
  • drobi12
    12 months ago

    new test available to assign risk of tysabri and pml for those having pml antibodies

  • drobi12
    12 months ago

    t think there is a new test to tell if you are are risk for pml even with presence of pml antibodies on tysabri. dennis

  • PetieJ
    12 months ago

    Hi Mike-I’ve never heard of it, but just wanted to say I thought you are very brave for being so open to trying what ever may be available. I’ve been on Avonex, mostly on than off, but a couple of years ago tried Tecfidera. It was so utterly painful, And other assorted side effects, I just couldn’t bear it- and I’m a tough ole bird-I can tolerate a lot of pain…up to a point, as anyone. But I had to stop the Tecfidera and go back to Avonex. It was such an awful experience, it would take a Lot to convince me to try something different at this point.
    But, I support you Mike, in your endeavors to forge ahead bravely!

  • drobi12
    12 months ago

    Tecfidera was too difficult for me to tolerate also. tysabri was best but i suppose we are all different dennis

  • Mike H author
    12 months ago

    Hi Petie
    Glad the Avonex has been cooperative with you. It gave me flu like symptoms when I took it so its longevity wasn’t long with me. The orals : Gilenya, Aubagio & Tecfidera were just OK. No side effects. I relapsed within 6 months of taking each of them so they were also short lived. Tysabri for 2 years then doc said no more because of PML scare. I did well with that med too. Misc times with solumedrol in between meds. No side effects. Did an IVIG stint for about a year or so then onto Rituxan for about 2 & a half years. Then relapsed. Requested Tysabri again so started, 2nd dose done 2 days ago. Like I said, I am not afraid to try anything. Side effects have never given me a problem. Been lucky with that I guess…… good luck Petie with forging on with Avonex Hope you continue doing well…. …..Mike

  • Mike H author
    1 year ago

    Called ibudilast…….

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