Ampyra and my PPMS journey..........My name is Ed ( aka - undisclosEd ), I am 65 years old, retired, and I was diagnosed with ppms on Aug. 14, 2014. My journey started on May...Reactions0reactionsComments2 comments
My Health Insurance Guide...The Multiple Sclerosis Association of America (MSAA) is excited to announce the launch of a new website section dedicated exclusively to helping the MS community better understand and utilize health...Reactions0reactionsComments0 comments
Feeling worthless...I was diagnosed with the MonSter in January of 2000. I have actually had it longer.....my dr looked through my charts and saw I had symptoms since 1990 or so...Reactions0reactionsComments2 comments
I Have What?...Why am I telling my story, because other MS patients share some of these views with me. Why me, and where do I go Next. This disease is a family...Reactions0reactionsComments1 comments
Multiple Sclerosis 101: Understanding the Immune System...The immune system is a fascinating and complex thing! In fact, scientists still have a lot to learn about the immune system and autoimmune diseases. But we do know it...Reactions0reactionsComments7 comments
MS Fatigue - When My Tank is on Empty...A newly diagnosed person was asking about fatigue and I went looking for information to share. In the process, I learned a few new things about MS fatigue, but first...Reactions0reactionsComments64 comments
Nasty Tongue...My tongue hurts everyday like needles and pins. I had a tongue biopsy from a ENT DOCTOR and he told me it was from my MS [Autoimmune Disease]. Now 3...Reactions0reactionsComments0 comments
MS saved my life...I was diagnosed with ms in 2008 at age 50. I was a high functioning drug addict and alcoholic. The 2 years following my diagnosis was absolute hell. I lost...Reactions0reactionsComments0 comments
Juggling potential caregiving with career change...I am somewhat new to the MS care giving scene, with my wife recently having a major relapse with her MS as a result of her recent pregnancy. She is...Reactions0reactionsComments1 repliesCaregiving
Pressing Past the Pain...I was first diagnosed with multiple sclerosis in 2010. It started out as blindness in my right eye. I went to the emergency room and test were ran to show...Reactions0reactionsComments2 comments
Nuvigil: Is My Solution My Problem?...I not long ago talked about MS-related fatigue and lassitude; I mentioned how taking Nuvigil (Armodafinil) seems to be my personal solution to my fatigue/lassitude. What I may not have...Reactions0reactionsComments0 comments
A light at the end of the tunnel...I had set out yesterday morning to tell you all about my sh**ty summer and then everything changed. You see, since this May, I have been battling a nasty case...Reactions0reactionsComments4 comments
Altitude...Hi, I live in Colorado and have MS. Over the last couple of years, we have visited family in Michigan, and while we were there, my symptoms have gotten significantly...Reactions0reactionsComments1 repliesCoping
Disabled accessibility at places we go...Hi: I was diagnosed with RRMS in 2008. I use a walker and scooter to get around. I created a website for contributors to review disabled accessibility of restaurants, attractions...Reactions0reactionsComments0 repliesCoping
Can MS Patients be Organ Donors?...I have a progressive form of MS. I was recently diagnosed (6 months ago), but I have been fighting the symptoms for many years. I recently discovered that I have...Reactions0reactionsComments3 repliesCoping
Multiple Sclerosis 101: Understanding the Nervous System...I have a theory that education leads to empowerment, and empowerment leads to people being good advocates for themselves and improved health overall. It can be hard for healthcare providers...Reactions0reactionsComments7 comments
I am a FRIEND of MANY MSers...I was grandfathered into an MS Yoga CLASS in Seattle, WA. I have Stage IV: ILBC, with Brain-Mets. I am also, an OUTLIER --- NEVER supposed to SEE age 40;...Reactions0reactionsComments0 comments
My journey with Primary Progressive MS...Over the course of more than a decade, I had been complaining to my doctors of periods of utter and complete exhaustion; fatigue that made my legs feel like concrete...Reactions0reactionsComments0 comments
Natural way is it the only way???...Hi my name is Phil diagnosed in 2003 with progressive MS told by my neurologist I would be statistically in a wheelchair 2008. Still not, but still slowly degrading. Using...Reactions0reactionsComments8 comments
Balancing the Tilt...After my MS diagnosis in 2005 I bought myself a necklace with 3 silver circles engraved with courage, strength and spirit. Of these, the concept I work hardest to maintain...Reactions0reactionsComments2 comments
