“Go to Fatigue”...Living with an invisible disease of which fatigue is one of the most common and challenging symptoms is not easy. It’s a giant thorn in the side of almost everyone...reactions2comments
Coping ...Exercise, eating the right foods. Lots of fruits and vegetables....reactions1replyResearch & Clinical TrialsDiagnosisDepression
I don't know what's going on........I have seen 4 neurologists in the past 2 years and no one has given me anything definitive, regarding a diagnosis. The second doc saw "Focal and confluent T2 signal...reactions8repliesDiagnosis
Anyone using Kesimpta ...Hi I’m interested in anyone having side effects from Kesimpta. Have just started my first dose on Friday , it’s now Sunday night and I’ve had 3 days of terrible...reactions4repliesSide Effects
Is this a relapse?...Hi, First time here. I was diagnosed with RRMS in 2007 and never had a relapse. Two months ago, I became seriously ill with the flu and, thereafter, had burning...reactions3replies
Trials starting for CAR-T cells for MS...https://www.nature.com/articles/d41586-024-00470-5 It's for "re-setting the immune system" - Researchers have therefore turned to CAR T cells, and specifically to those that kill B cells carrying a protein called CD19. CAR...reactions3repliesResearch & Clinical Trials
Fatigue ...I go to a neurologist in Seattle that specializes in MS. He tells me fatigue is not a symptom of MS! This is SOOO difficult for me to believe. You...reactions1replyFatigue
Timber! MS, Balance, Trips, and Falls...Is it just me, or does it feel like the fall after that frantic and wobbly “I’m losing my balance dance” happens in slow motion? Not really slow enough to...reactions14comments
MS Treatment Options...How are you currently managing your MS? What treatments are you using, and how are they working out for you? ***There is no one-size-fits-all when it comes to MS management...reactions3replies
PowerPro vibration plate...Anyone have experience using a vibration plate for fitness with mS?...reactions6repliesExercise
Tracking How I Weather the MS Storm...I dropped $495 in early November to pre-pay for a season of snow plowing for Jennifer and I's driveway. It was a heck of a cost-savings deal knowing how winter...reactions1comment
core temp...My name is Mike After arm weakness and other mild symptoms that are typical with progressive types of MS, a lumbar puncture finally confirmed MS. This was 2005 and there...reactions4repliesTips & AdviceFatigueExercise
Life Insurance ...I’am currently not employed, and having trouble getting life insurance coverage. Anyone else have this problem?...reactions1reply
Exercise...I have had MS for 20 years and I find that restorative yoga once a week helps me plus I walk about 6 miles a week. I do stretches but...reactions1replyExerciseTips & Advice
An Odd Correlation...I’ve never been a drinker. In college, I joined friends in ‘braving the waters’ before a party once, and it was quite an experience, but definitely not a pleasurable one...reactions2comments
Dr Epstein (of Epstein-Barr fame) has died...https://wapo.st/3OMkQCm (gift article link; not need to worry about paywall)...reactions2replies
Head mri ...I have rrms been diagnosed since 2010.Been having mri's for years. The last couple of years, I find myself getting so much anxiety around having a mri. Was due one...reactions1reply
Feeling Played by My Doctor...We like to think of our doctor as the source of helpful recommendations to manage multiple sclerosis (MS), right? But what if they’re actually a gatekeeper and withholding information, such...reactions50comments
My driving...My doctor recommend that I do not drive at night . I will not drive in a city where there is traffic from all directions. I just drive locally since...reactions6repliesTravelAwareness
MS, ALS or both? Has anyone experienced something similar?...Greetings, everyone. This is my first (29M) post and it has to do with the health issues my mom(62F) has been dealing with during the last couple years. I know...reactions4replies
