MS hug...So I get the MS hug a few times a year it seems and they're unbearable with twisting of my spine and the tightening where I can't breathe for up...Reactions0reactionsComments3 replies
Cool Down MS Giveaway...There's no way to go around it. This summer of 2023 has been hot, humid, and borderline unbearable! Summertime for many people means fun in the sun and outdoor activities...Reactions0reactionsComments73 comments
A Strange Event While I slept...I'm Steve. I am 58 and I've had MS for 1 year. Mine is PPMS and, at least as far as I'm concerned, my s/sx are fairly severe. I was...Reactions0reactionsComments1 replies
Sometimes, I Still Don't Believe It All...As of this writing, I’ve been diagnosed with multiple sclerosis for over 23 years. I am 45 years old and have been disabled for the last 10 years because of...Reactions0reactionsComments15 comments
Christina Applegate....I propose someone invite Christina Applegate write stories on this site, that would be fun....Reactions0reactionsComments3 repliesAwareness
Painting the Downtown Beautiful Despite MS...Dan and I literally left our mark on Mt. Pleasant one Saturday morning in the middle of June. In fact, I believe we left the city even more beautiful than...Reactions0reactionsComments7 comments
How to manage symptoms waiting for diagnosis...Good morning all, I recently had an MRI due to migraines that showed 2 MS lesions (other lesions as well they think are mini strokes related to my migraines). I...Reactions0reactionsComments13 repliesPainDiagnosisSymptoms
Seeking advice....Hi, y'all! I apologize in advance for the book. I am just desperate for advice. TLDR: How do I continue advocating for myself and going through testing to determine if...Reactions0reactionsComments1 repliesDiagnosisMental Health
Anyone having increased heat sensitivity on Ocrevus? ...Wondering if anyone is having heat and sun sensitivity since starting infusions. I had my first round in May. The heat is extreme this summer, but I also haven’t had...Reactions0reactionsComments1 repliesCoping
Dopamine ...Hey, all! I wanted to share my experience this weekend and see if anyone else has any stories like this because I think I may be onto something to get...Reactions0reactionsComments27 repliesFatigueTips & AdviceWeather
Ct showing spots awaiting mri...Hi anyone have these results? I have many symptoms of MS and the doctors think that’s what it is. I had a urgent ct done today as there’s a long...Reactions0reactionsComments1 replies
Newly diagnosed ...Hi I'm new to ms, I got diagnosed a month ago. I have a question if you don't mind? I have achy limbs on and off every day, I know...Reactions0reactionsComments1 repliesDiagnosis
Limp muscles...Last week for a few hours my muscles, legs, digestive tract, but not arms, went totally weak. My legs gave way and I slid to the floor, Couldn’t even lift...Reactions0reactionsComments2 replies
What Not to Say to ME With MS, and Why I Sometimes Feel Like a Fraud...I know we have an invisible disease, but if there is anything that bothers me, it is somebody commenting on my symptoms. You can’t even see my symptoms! What are...Reactions0reactionsComments55 comments
MS: The Disease of Patience...Multiple sclerosis is a disease that revolves around patience. There are many aspects of living with MS that force you to slow down, whether you like it or not. It’s...Reactions0reactionsComments13 comments
How 2 du it....I don't need no stinkin' instructions. Well, maybe. My last project was the assembly of a bed rail to assist me in and out of bed. This is so simple...Reactions0reactionsComments2 replies
I love a challenge ...I love challenge my challenge started when I was 14 yrs old when I was told I had Ms. And at 14: all I wanted t know am I going...Reactions0reactionsComments1 replies
Hitting a Wall with Fatigue…😔...I was spinning all the plates, feeling ahead, and then I crashed. Beginning the uphill climb back to functioning, which is at least a few days. Hoping to return on...Reactions0reactionsComments1 repliesFatigueDepression
The Life of a Law Enforcement Officer...Way back in the early summer of 1995 (actually the month of May), my wife and I went to Florida and stayed at a condominium for our 3rd anniversary, which...Reactions0reactionsComments1 comments
Musicians with MS...Music can be a powerful tool to soothe the soul. Many in the community have mentioned playing instruments or being in bands. We’re wondering, what instruments have you or do...Reactions0reactionsComments14 repliesTips & Advice