Others May Not “See” It. But I Feel It.
Last updated: October 2020
During Invisible Illness Awareness Week, we want to recognize and shed light on all those affected by an illness that may go unnoticed despite the major impact your illness has on your daily living. There are so many hidden challenges and frustrations that come from living with an invisible illness.
Major impact on your life
- Physical health – uncomfortable symptoms like pain, fatigue, or muscle weakness
- Emotional health – feelings of anxiety, isolation, depression
- Cognitive health – frustrating brain fog, memory, issues with concentration
- Social health – relationships, support systems, professional accomplishments
"But you don’t look sick?"
This year, we want you to know that we stand with you and want to honor each and every one of you living with an invisible illness. We know that others may not see it, but you feel it. People living with invisible illnesses often hear things like, “But you don’t look sick?,” “I know exactly how you’re feeling,” “Don’t worry, you’ll beat this and be back to normal,” and, “You’re just having a bad day.”
No two experiences are the same, and we want to support you in your journey. Join in on our community conversations below and share your story.
Join the conversation, we want to hear from YOU!
Share with us one or two invisible parts of your illness that you wish others could see.
Post to our Q&A section and ask others which invisible symptom is the most challenging for others to understand.
How do you describe what you are going through to your loved ones? Comment below and let us know.
What does advocacy mean to you as someone living with multiple sclerosis? Please select all that apply: