A Day in My MS Life
The other day I shared my story of how MS came into my life 22 years ago. This time I would like to share a typical day in my life with advanced SPMS. Not to scare people, but to try and show that despite the hardships, life is still worth living. I realize that most of those reading this will (thankfully) never be as disabled as me. But MS is indiscriminate, and some are affected more than others. I probably drew the short straw, but I have learnt to live with it, and I'm still learning every day.
Good thing my wife is a light sleeper
I sleep in a medical bed in the same room as my wife, which allows her to easily assist me with turning during the night, which is required every three hours or so to prevent bed sores and to relieve me from pain after lying in the same position for too long. Good thing that my wife is a very light sleeper anyway...
On weekdays the morning routine starts at six, although most mornings I have already been awake for an hour or two at that point, mainly because of painful muscle spasms in my legs. My wife first washes me down in bed and then empties my urine and ileostomy bag. Until last year, every other day she had to help me empty my bowels, which was a time-consuming and painful process. But the ileostomy has thankfully made things a lot easier.
Then she proceeds to dress me. Depending on the level of spasticity, this can take a while and can sometimes be quite comical.
Then comes the transfer to my powerchair, with help of a ceiling lift.
Do you live with any comorbidities aside from MS?