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Al’s Story

I’m 65 years old, diagnosed with Primary Progressive MS two years ago. To make sure it was MS, I was sent to many specialists so they could eliminate everything else but MS. I didn’t realize how rare MS is, my daughter has relapsing remitting and is in a support group. It never occurred to me that there’s just 80K of us in the US.

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  • Erin Rush moderator
    1 year ago

    Hi kochaf! Thank you for sharing a bit of your story with the community! While I am sorry for your diagnosis, I am glad you have some answers and have found this community. Your diagnosis journey is not uncommon — it does seem as though physicians want to rule out all other possibilities before making a definitive MS diagnosis. Thank you again for sharing and for being a part of this community. Best, Erin, Team Member.

  • kochaf author
    1 year ago

    My family & I are glad I found you folks, I was feeling awfully alone. No one other than my MS Specialist Neurologist seemed to understand what life is like with PPMS, not even Medical Professionals.

  • Kelly McNamara moderator
    1 year ago

    @kochaf, it’s community members like you that make the community what it is! Everything you shared I think will really, really resonate with others! – Kelly, Team Member

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