But you look so good…

I was diagnosed after my second child at the age of 33.

I believe I am very lucky as some people wait for years to get the “official” diagnosis – mine was right out of the gate. Most of my symptoms are invisible to everyone else but me. Many times when the topic of my MS came up, I would always hear, “but you look so good…”

I grew weary of hearing that phrase. Fatigue, bladder and bowel issues accompany me everywhere and while I feel lucky not to have a cane or walker, there are days where I would trade. Having bowel and bladder issues is something no one wants to talk about or even hear about, so it is easy to avoid them, but they can be just as debilitating none the less.

After almost 20 years of living with MS, I’ve recently made a change in my diet and found that the fatigue isn’t so bad anymore.

I dropped refined sugars and keep the carbohydrates to the bare minimum.

The future doesn’t seem so scary now that I feel like I have the upper hand on my MS. Now I really feel “so good”.

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Comments

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  • dkr55
    6 years ago

    I first started having symptoms of MS 17 years ago, which were mostly limited to vision problems, but was only diagnosed a year ago. At this point, when people give me the “but you look so good” line, I thank them and say I am glad to be doing so good. On the other hand, I was embarrassed a few months ago when I visited my parents after my mother had a hip replacement and she jumped up out of the best chair in the house and insisted that I sit in it because my most visible problem is getting up and down. I have bladder problems, but I hide that by finding a bathroom IMMEDIATELY at the first feeling that I need to urinate. I have spasticity problems, but I practice walking normally without letting it show. I have balance problems and my knees are not trustworthy, so I make sure, as much as possible, I have something nearby to hold onto or stumble into without notice. My point is that, I create the “but you look so good” observations from other people.

    Having MS is certainly a scary challenge. Those closest to us may have an idea of what we are going through. Our peers in the MS community might have a better idea of our challenges, symptoms, fears, and issues, but it seems to me that each of us has a nearly unique situation because of the variety of symptoms, pattern of our disease, and the way each of us deal with it. I am looking for ways we can relate to each other to make it just a little better.

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