Hurting all of the Time

By scottiemack

1 min read

My wife was diagnosed with M years ago. It took a long time of suffering before the diagnosis.

RRMS to SPMS

She has moved from RRMS to SPMS. She is in pain 100% of the time. No matter what I do it how I try to help nothing works. I have taken her 100's of miles to supposed MS specialist and to no avail or even worse.

New diagnoses add challenges

Her MS is Compounded by a recent Lupus diagnosis and spinal issues But ever day I wake up with the hope that today will be a good day. But I'm met with cries for help and hers along me to cut her legs off.

Being there for her

So each day I do the best I can to massages her legs with lidocaine. Pump her up with CBD and get her moving. We didn't have children but we do have Furkids which I let her know I'd her reason for living and moving. That's our story.

Keep looking and keep moving

I know once I find the right therapy for her.her life will become so much better. I take 1 hour at a time. Thank you for letting me Share.

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jueng Member
I am so sorry for your wife's situation & yours as well.. 🌻 I see a functional neurologist. I have primary Progressive MS. Seeing a functional neurologist, It is like physical therapy for the brain. They hv diagnostics that can assess your brain, where the problem areas are & then create a treatment plan to remove or reduce symptoms. It is noninvasive-best way to put it is physically therapy for the brain. The doctor will also give you easy to do brain exercises-no movement required if u that's an issue. Functional neurologists are focused in relieving pain & heal/fix the brain as best as it can be. It is not a cure but, their treatment is individually tailored to get a person as close to "normal " life as possible. I hv trouble breathing and yawning because of my MS. U never realize how important yawning is until ur brain wants u to yawn & u can't. After in office treatment & given at home exercises I can. So if my ms brain "glitches " & my chest feels tight & my breathing feels shallow or I try to yawn & I can't, I will do a quick brain exercises . Then I can yawn & my chest relaxes & I can breathe normal. I realize this might sound crazy, but my story is true. They have helped me to stop the Glitching or rewire Around it due to my MS. They help optimize my brain function best as possible & 
1. SharonW27 Member
 <inline-mention username="jueng" user-id="4076673"/> That is fascinating! I will look into it further.
2. scottiemack Member
 <inline-mention username="jueng" user-id="4076673"/> thank you for your advice
jueng Member
I think my full message was cut @ the end? So, I'll finish here. Sorry if I'm wrong & I'm repeating myself. They help optimize my brain function best as possible and reduce/rid my symptoms. It is an amazing treatment. Another treatment possibility is acupuncture. I also use it for pain, help with my sleep, muscle spasms, stress, & heart palpitations. Take good care- I hear the love u hv for your wife. It's my husband's love that gives me strength to get through another day.
1. Lori Foster Member
 Hi @jueng! I am thrilled you found a neurologist who works with you like that. There is nothing crazy about it. It sounds like your neurologist is uses neuroplasticity therapy to help you access part of your brain through new pathways. Here is an article about neuroplasticity from one of our advocates: <a href='https://multiplesclerosis.net/living-with-ms/neuroplasticity-exercise-brain' target='_blank'>https://multiplesclerosis.net/living-with-ms/neuroplasticity-exercise-brain</a>. I hope your advice helps @scottiemack. Thanks so much for sharing. - Lori (Team Member)
Erin Rush Community Admin
Thank you so much for sharing a part of your wife's and yours story, scottiemack ! I am so sorry your wife is dealing with multiple health conditions and constant pain. I know that must be hard for you to witness. I think it's wonderful that you are such a strong source of support and love for her -- I know it can't always be easy. And I am glad you have furkids to keep you both smiling (as a furparent myself, I understand how much our pets can enrich our lives). I hope your wife finds a successful treatment option for both her MS and her Lupus very soon! Thank you again for sharing! Best, Erin, <a href='http://MultipleSclerosis.net' target='_blank'>MultipleSclerosis.net</a> Team Member.
Lori Foster Member
Hi <inline-mention username="scottiemack" user-id="3952828"/> . It has been a while since you shared your story, so I thought I would check in and see how you and your wife are doing. I hope you found some good treatment options and that you were able to enjoy the holidays together. Please know we are always here for both you and your wife whenever you need support or a place to vent. Thinking of you. - Lori (Team Member)
scottiemack Member
Hi Lori, Thank you for thinking of us, 2021 ended badly for Laurie and I. She has started accuppuncture, so I'm hopeful but not overly optimistic. Unfortunately the crap that life has thrown at us has been making me depressed. I have always been the optimist and would wake up each day clean slate saying today will be a great day. Now I'm praying for an average day. But then agay This too Shall Pass and things will get better. It's crazy how most off us must bottom out before we realize how actually Good we have it. Thanks again and the best of Health and Happiness to you your family and the MS.net Family. God Bless.
1. Erin Rush Community Admin
 <inline-mention username="scottiemack" user-id="3952828"/> , I'm sorry 2021 was a tough year for you and Laurie. I bet you already know this, but it's important to take care of yourself too, both mentally and physically. This is some pretty basic information on taking care of yourself and watching for burnout -- <a href='https://multiplesclerosis.net/living-with-ms/tips-for-managing-caregiver-burnout' target='_blank'>https://multiplesclerosis.net/living-with-ms/tips-for-managing-caregiver-burnout</a>. Please know we're thinking of both of you and I hope 2022 is a better year for you! And I hope those furkids keep both of you smiling, too! Best, Erin, <a href='http://MultipleSclerosis.net' target='_blank'>MultipleSclerosis.net</a> Team Member.
2. Lori Foster Member
 I hope you read the article Erin provided, <inline-mention username="scottiemack" user-id="3952828"/>, and that you lean on us and others for support. Have you considered talking to a therapist? It might help to have an uninvolved third party to discuss your feelings with. Maybe it will lift you out of your depression a bit. Are her doctors addressing her pain issues at all? Nerve pain can be so difficult to treat. I hope you find something that brings her relief even if it is just for short periods. I can't even imagine how hard this is on both of you. It is such a helpless feeling when someone you love is in pain and you can't make it better. My heart goes out to you. - Lori (Team Member)
scottiemack Member
Thank you

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