Dancing With MS

I love to indulge in a good celebration – especially birthdays. I’m much like my Aunt Edna who also enjoys celebrating her special day in true party fashion. One of the things I loved most about her celebrations was the ‘line’ dancing… for example, the ever popular Electric Slide!

At the start of the familiar beat, my mother, my Aunt Catherine, and the majority of their siblings would hurry to the dance floor, then my father and some of the other party people joined them. By the time “…are you coming with meee?”, there were more on the floor, and at the point of “…let me take you on a party riiiide…” I, along with my sisters and cousins, were up (if not before), but at the point of “and I’ll teach you, teach you, teach you.. I’ll teach you the Electric Sliiiide..”, pretty much EVERYONE was ‘sliding’!

Then this happened:

2006

Dover Air Force Base NCO Club…Aunt Edna’s Birthday Party..The Cha Cha Slide…Me and my father’s dance floor exchange:

Daddy: Come on..you not doin’ nothin’! (As he watches with a grin and a question behind his eye at my uncharacteristic stilt like movements on the dance floor).

Me: I’m tryin.. I must be tired!

(Trying to ‘play it off’ because I was actually struggling to finish the song while wondering what was going on to make my legs so achy and feel like they weighed 500 lbs – each!

2007

That incident, in addition to several other symptoms, prompted a referral to the neurologist for a much needed examination. The result: I was diagnosed with multiple sclerosis.

That Cha Cha Slide was the last line dance for me, but my zeal for ‘grooving’ and celebrating life remains – in spite of MS challenges. My dance has not stopped, it simply changed.. From my seat or wheelchair, you’ll find me doing a little something called “Dianne’s Wave”!

#WeAreStrongerThanMS

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Comments

View Comments (6)
  • freedom
    2 years ago

    Thanks for sharing your story. I have limited mobility but do well in the big picture. I, however, have a simple fantasy/dream..to go out on the dance floor a kick it up!! I’ve told my kids just take me for 5 maybe 10 minutes cause I know with the noise and physical motion I will be “done”. Hasn’t happened yet, but your essay has convinced me to make it happen. Dancing in a club again is on my bucket list. Wish me luck

  • Dianne Scott author
    2 years ago

    Happy to hear from you..
    Wishing you the best of luck to you, Freedom! You’ve got this!!! Go get ’email on that dance floor, my friend!

  • Dianne Scott author
    2 years ago

    Hi, PattiandBob!
    Love your motto!! Keep dancing!
    Btw, thanks for your comment! ☺!

  • Dianne Scott author
    2 years ago

    Thanks so much for your comment! Ithe makes me happy that you could appreciate my story! ☺

  • DonnaFA moderator
    2 years ago

    Hi Diane!

    Thanks for being part of the community and for sharing your story with us.

    I was sad when I read that that was your last Cha Cha Slide, and the I got to “My dance has not stopped, it simply changed.” I absolutely love that line! Thank you for sharing your grace here! <3 -Warmly, Donna (MultipleSclerosis.net team)

  • PattiandBob
    2 years ago

    My husband and I LOVED to dance and did so at every opportunity. He now has secondary progressive MS which has him in a “chair” full time for the past 7 years. That has not sidelined us though .. we are often spotted on the dance floor “dancing” 🙂 him in his chair and me holding his hand. It’s amazing how others cheer us on and laugh with us .. our motto is NEVER say NEVER when it comes to MS trying to limit us.

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