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Didn’t understand it until I had it.

My mother had MS. I tried to understand the disease and learn as much as I could attending her support group meetings, taking trips to her Dr. but I didn’t really understand what she was going through. About 4 years before she passed away I became more clumsy, fatigued, spastic legs jumping more and more. This is when I was first seen by my first Neurologist, and discovered that I too have MS.

We decided to keep my diagnosis a secret from my mother as I knew her reaction would not help her failing condition. It wasn’t until she passed away I shared my condition with the rest of my family. Since then they have shown tremendous support and understanding. Not a single day go’s by I regret my decision to keep my diagnosis to myself.

Someday we will be together again, and I’m sure she is proud of the fight I am waging. Recently after working for 13 years with the condition I am realizing my work life is coming to a close. I am a former Police Investigator, Firefighter EMT and now currently on a medical leave from the Nuclear Security field.

MS want me to give in, I just want to have a better tomorrow.

-TLS

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Comments

  • Laura Kolaczkowski
    6 years ago

    TLS,
    You hit such an important point in sharing your story – our family and friends can do their best to understand but only if you have MS do you see the entire picture. You’re an example of both sides and I am sure your mother appreciated the support you showed to her through her MS battle.

    Good luck with this next phase of your life – the work for pay might be ending, but I am guessing you will find more meaningful ways to use your talents. be well, Laura

  • Lois C.
    6 years ago

    You didn’t mention any treatments you might be on. Have you found any of them helpful? Which ones…the ABC drugs or Tysabri? I’m 64 years old and doing well with Tysabri infusions once a month. I do hope you know that every individual with MS has a different constellation of symptoms. There are excellent treatments now to slow or stop progression of the disease. The treatments weren’t available to me until 7 yrs. post diagnosis, but since then my overall health has improved significantly. I wish you all the best. Lois C.

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