Double Whammy – Cerebral Palsy and MS

My name is Mikki. I am a lifelong resident of North Carolina. I was born 3 months premature, weighing only 2 lbs, 13 oz. in 1966. It’s a miracle I survived. I was diagnosed with cerebral palsy (CP) at age two and I had my first surgery at age three. I’ve had 30+ surgeries in all.

In 2014, while my husband was battling colorectal cancer and going through chemo, my neurologist called me on 7/8/2014 and gave me the news that no if’s and’s or but’s I had MS. My response was “Happy Birthday to me”. Yes, I got the dreaded diagnosis of MS.

Prior to the MS diagnosis, I was struggling with fatigue like nothing I had experienced. I was unable to be out in the heat working in my flowers which I couldn’t figure out why because CP loves heat & hates winter. Eventually I couldn’t lift my left arm to fix my hair.

I called my trusted neurologist and asked if he would order a C-Spine MRI that I thought I had a disc pressing on a nerve. He called me a few days later and said, “Mikki, you have a spot on your thoracic Spine that is consistent with MS.” I said, “I can’t have MS, I have CP, and Dr. P, you do realize my husband is having surgery Monday to remove his cancerous tumor.”

Being the kind-hearted, compassionate neurologist Dr. P is, he said, you get Steve taken care of and once he’s home we will do a Brain MRI.” I had the Brain MRI. I had five to six lesions on my brain, three to four lesions on my cervical spine, and three to four on my thoracic Spine. Treatment started immediately.

I started monthly treatments of Tysabri IV infusions. I did really well until last October when my JCV numbers started increasing so to alleviate the chance of getting the rare, incurable brain disease PML I started the new MS drug Ocrevus. The infusions are every six months. I started in January and just had my second treatment July 5th.

So far, so good. Yes, I was dealt a bad hand, but God has a plan and he has my back. I’m praying a cure for this dreaded disease will be found soon. Thank the Lord, my husband has been cancer free for 3.5 years now. While I have bad days and pity parties, I am blessed.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MultipleSclerosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (4)

Poll