Early Start

I was first diagnosed when I was 17 and was stuck in the hospital for a long time because I had lost all function of my tongue, so I couldn’t swallow, eat, or drink. I turned 18 in the Hershey Medical Center and then finally got to go back to school. After that I tried every drug there was and had every nasty side effect you would think of until I started Tysabri and that was the only thing that helped and didn’t make me terribly sick all the time. I am tired all the time. I have a 5 year old son and a 1 year old daughter, and it makes it hard for me to do everything they want to do being so tired and in pain all the time. I try really hard to make them happy and while I work being a single mom. I have to give my mom a lot of credit for helping me out, but she doesn’t fully understand how I feel all the time. Especially with the anxiety and depression on top of the MS. I can’t find a job that I actually enjoy because I have issues with focusing and memory loss. People think I look good so I should feel good and that’s just not the case. I wish I had someone who really understands.

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Comments

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  • Erin Rush moderator
    3 months ago

    Thank you for sharing a part of your story with the MultipleSclerosis.net community, eernst5!

    I think members of this community can relate to many parts of your story, from the struggle to find a good workplace, to being a parent with a chronic condition, to dealing with depression and anxiety. While we wish no one had to deal with MS, I hope it offers you some measure comfort to know you are not alone in this struggle!

    I am not sure if you have read this piece on parenting with MS (we have quite a few!), but I thought you would find it relatable — https://multiplesclerosis.net/living-with-ms/parenting-with-ms/.

    Also, here is some interesting thoughts on working and living with MS — https://multiplesclerosis.net/living-with-ms/job-ideas-disabled-want-work/.

    Please know that this is one space where people can truly get what you are going through. You are welcome here anytime you need to vent or need some extra support.

    You are not alone!

    Thank you again for sharing and for being a part of the MultipleSclerosis.net community.

    Best, Erin, MultipleSclerosis.net Team Member.

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