Waiting for Answers
I wrote a bit about this the other day but I think in the wrong place.
I haven't been diagnosed with MS but have wondered in the back of my mind, even without knowing much about it.
Electric shock senstation in my tongue
Recently, I experienced one of the strangest sensations I'd ever felt which was an electric shock sensation in my tongue, followed by a burning sensation that was still there the next morning. This prompted me to see the Dr. I could only see a locum on the day but have now seen my GP. By this time I'd experienced that same sensation in my tongue about 5 times. I sat down and made a list of all the random symptoms I've been having. Some of these I have had tests for in the past. I had my nerves tested in 2017 (all fine). I have also had blood tests for ongoing joint pain, especially in my hands to see if I have arthritis (fine), and saw an ear, nose, and throat specialist for chronic sinus issues (everything was normal. Conclusion: must be muscular skeletal). I have previously told the Dr about these weird electric shock sensations I get in my hands as well as the tingling, especially the right one.
A list of other ongoing symptoms
In addition to these things above my list included:
Tinnitus, noise sensitivity (this has been happening for Years), brain fog, lower back pain on right side and right hip pain (since the appt I have pain in left hip); other strange cognitive stuff going on, having issues saying some things, noticing irregularities in my writing, feeling that my hands and upper arms feel weaker; newer things like pin prick sensations and a sort of burning feeling in my skin - and these have been happening in more places in my body. Some of these have been worse or have been new since my appt.
I feel a bit like I must be imagining it all. But that electric shock in my tongue really got my attention.
Referred to a neurologist
The GP has made a referral to a neurologist. I want to see a new one. I have one already as I have epilepsy due to childhood encephalitis that near killed me. It looks like it will be a long wait due to delays because of Covid. Possibly about 3months. But it could be earlier if there is a cancellation. Fingers crossed!
Grateful to read everyone's stories here
Reading people's stories on here has really resonated with me. I found myself with tears the other day because it just felt so familiar. I think it was a feeling of relief. It is so frustrating when you feel like something really isn't right but all you get it results saying everything is normal.
I am just writing down all my sensations every day. If they are better or worse or if anything new happens.
Do you have any cleaning hacks that make your life easier?