My family is a walking bulletin board for MS
My story begins with my great grandmother. She had MS and suffered til the day she died. My grandmother had MS and suffered til the day she died. My mom has had MS at age 13 and still suffers from it and is almost 70. I am almost 50 and have had it real bad since I was in my 20's.
I still have it and it plagues my every day of living. And now my fear that my daughter has it is coming true. She will not go get tested and wants not to know, I was like that also but I had no choice to face it when I could not walk or have any feeling in my body one day and my dad had to physically pick me up off the floor and take me to the hospital.
I was able to keep my MS under control until my doctor lost his hospital where I could get treatment and then he retired. Now I get no help and I am drowning in depression and my body keeps failing me. I am a very religious person and have a strong faith but the depression from the MS. is eating me up inside. I had to go on disability.
Don't get me wrong it saved me to get a roof and food. But it is disabling too because I will never be able to do anything with my life it is not enough to live off of. My daughter is going to be getting married and I will not be able to afford to go to the wedding. It is killing me. My son died at 17 and this is my only child left and I want to see her get married. I will never see my son get married or have kids so it is important to see her do this. So if this makes me sound like I am feeling sorry for my self. I am trying not to. Its all getting piled up right now.
My MS is getting extremely bad and I feel like I am worthless to my family and friends. I can't help myself and or my family. I always worked since I was 13 and I was always there to take care of myself and my family. How do you relearn to let other care for you when your an independent person all your life?
How many specialists did you see before finding "The One"?