Fortunate Than Most

I was diagnosed at age 37, having tingling, numbness of my hands and feet. I went through all the testing, MRIs, etc. I had been on different medications, one with weekly injections. I had to teach myself to do the injections...which wasn't easy. I don't mind needles; it's just administering them to myself. After months of driving each week so my sister could give me the shots, I finally learned to do it. The numbness/tingling stayed pretty much status quo.

Progression and acceptance

But my gait started to show a slight limp, and I told people it was from exercising. That worked for a while. Then I became fatigued more, especially with my job with the airline. So I decided to retire. That's why I say I'm much better than most. I don't complain...what's the point? It is a terrible disease without a cure.

Mobility and self-care

I've become less able to walk without assistance over the last 13 years. I've graduated from a cane, to a walker, and now a scooter and a mobilized wheelchair. I love my scooter, especially for getting around the house. I'm able to get around more outside but not as much as I'd like because of its weight and difficulty getting it in the car. The latest mobile wheelchair is lighter and supposedly easier to get into the car. I just got it, so I'm very hopeful. So yes, you have to love on yourself...take the time for yourself, such as spa days, getting your nails done, or taking yourself to lunch. It helps your mind. I hope my story in some small way helps someone...it sure helped me to put it on paper.