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So frustrated

Hello. I’m new to all of this, so please bare with me. I’m 58 yrs old. It will be two years in October since my diagnosis.

I found out when I had my last MRI that my MS is slowly progressing. My balance is getting pretty bad. I use a cane and a walker. I still drive. I have numbness in my right hand and foot. Sometimes it feels like the skin is going to split right open.

I take Gabapentin that helps allot. My biggest problem is I don’t like to be around allot of people, I get all weirded out. Holidays Ect. I have a out of town wedding and I really don’t want to go. My question is…

Does anyone feel like that? I really don’t care what my family thinks. My husband is great, he is my best support.

All I do is take it one day at a time, I never know how I’m going to feel. Oh I take Copaxone.


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  • Mare Dziadul
    6 years ago

    I was diagnosed at 49. I feel your pain. It took me almost 5 years by talking to a therapist and finding the right mix of meds (anti-depressants)to finally get me to an leveled out feeling in life. I have so many issues and problems, the average person wouldn’t understand. The difference now is I don’t cry uncontrollably at everything or anything and I can “accept” life is what it is now. Hope you feel more accepting soon and God Bless.

  • cindy
    6 years ago

    I just am having my second major attack in 20 years….I just completed my last dose of iv steroids today and my MRI last night. I am really scared and depressed not knowing what is going to happen now. I recently moved in with my ex-husband to care for him just getting over cancer and am am afraid I will lost my job as well. I am now waiting for the neurologist to decided what long term meds I will be on. I don’t want to be social with anyone right now as al I do is sit and cry. I have been such a strong person up until now. I have applied for SSI disability and don’t where to go from here. Any input would be greatly appreciated. At 56 it is like starting over again.

  • ptb939
    6 years ago

    I am 58, married to a supportive woman. I stopped working in 2009, just couldn’t do it anymore. In the past I dealt well with crowds of people, restaurant mngmt. Now I don’t deal well with crowds at all. So I don’t like social situations like I did in the past.

  • treasure22812
    6 years ago

    after my diagnosis i returned to school and found i was totally frightened by people, my own peers even, the anxiety was so bad i missed days. the thought of being in a social situation horrified me.

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