Frustrated and in Pain

Let me start by telling you a little bit about myself. Back in I don’t know maybe 2003 or 2004, maybe even earlier, I would get this weird tingling feeling around my hairline and sometimes one side of my face felt numb like when you get Novocain at the dentist. During that time I chalked off as being tired from working and being a single mom. I would sleep when I could when the kids were at their Dad’s house. Also during that time, I had to have surgery on my Achilles tendon as it was shortened and tight and I was losing the mobility in my ankle.After that was taken care of I would have pain in my legs almost like major “Charlie horses” that wouldn’t loosen up. This went on for years.

Fast forward to May of 2009, My husband I at this point, have gotten back together and re-married for about 2 years. I started to have tingling in my left leg while walking with a friend. This stayed for about a day or so then came the heaviness. At this point, I called my family doctor, after she did a few test and due to my family history (my oldest brother has MS as well), she sent me for a MRI of my head and spine. The following week she told me that I have lesions on the spinal cord and brain and was indicative of MS and I needed to see a neurologist. The first neurologist I saw didn’t really do anything for me. The second neurologist confirmed the diagnosis with a spinal tap and started copaxone for about 2 years. Then I was diagnosed with Crohn’s disease and had to switch to Tysabri infusions every 4 months.

I am constantly in pain of some sort and extremely fatigued and have recently had to leave my job of 9 years and currently walking with a cane. The pain is unbearable at times and when I talk to the doctor I get no relief. I am trying to stay strong for my kids and my husband but it is hard to keep up on daily tasks. I am grateful for finding this site. I know I am not alone but I am not sure if they know how to give the support needed.

That is my story and I hope others understand to keep pushing but to listen to your body.

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