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Gelonne’s Life with MS

I am a 62 year old woman. I started the process of getting diagnosed with MS, in 1998. I go to my appointments take my meds as subscribed, travel 5 hours for testing. And now I’m told that I don’t have MS.

The Dr’s don’t know what I have, but it isn’t MS. Humph.

Soo am I supposed to start all over again? I don’t know what to do.

My first neurologist told me that he couldn’t say DEFINITELY that I MS, but, he believed that I have MS.

That was over 20 years ago. Now this Dr. who as only seen me once said I don’t..

Never mind that I have balance problems, that I fall frequently enough to learn how to fall so I don’t hurt myself. Or that I have trouble holding a conversation, or even that I tire easily. My legs always feel like I have pins and needles coursing through my veins.
My family and I have learned to laugh at myself for the symptoms. That doesn’t mean I don’t have MS.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • Sycoraxepp
    1 year ago

    I am glad you shared your story, I think I’m in exactly the opposite situation.
    I feel very alone regarding all this and I felt forgotten until recently. I had to be very aggressive with my family dr. I wasnt very good at that to begin with and had to learn. Finally I started bringing a well researched list and I always bring someone now. I dont know if I had been just another complaining old lady or what. When I started bringing someone and stuck to my list, well things started changing. I suggest it because I wonder if they always take us seriously. Maybe give it a try. Let me know how you do. Good luck.

  • Erin Rush moderator
    1 year ago

    Wow gelonne! I have never heard of a situation quite like this. If you haven’t already, I would definitely seek a second (or third!) opinion. A diagnosis of MS, as you well know, is quite serious. And removing that diagnosis is ALSO a serious thing. If you trust your established medical team over this new physician, then I would strongly consider that before you proceed with the new physician.

    I am sorry you are facing this, but thank you so much for sharing a piece of your story with the community!

    I am glad you have family and a sense of humor to get you through!

    Best, Erin, Team Member.

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